LIFE Survivorship and Transition Program, Childrens Center for Cancer and Blood Diseases, Childrens Hospital Los Angeles, and Department of Pediatrics, Keck School of Medicine, University of Southern California, Los Angeles, CA, USA.
J Clin Oncol. 2010 Nov 10;28(32):4810-8. doi: 10.1200/JCO.2009.23.4278. Epub 2010 Mar 29.
Young adult survivors of childhood and adolescent cancer are an ever-growing population of patients, many of whom remain at lifelong risk for potentially serious complications of their cancer therapy. Yet research shows that many of these older survivors have deficient health-related knowledge and are not engaging in recommended health promotion and screening practices that could improve their long-term outcomes. The purpose of this review is to address these disparities by discussing how formal transition of care from pediatric to adult-focused survivorship services may help meet the unique medical, developmental, and psychosocial challenges of these young adults.
Literature review and discussion.
This article summarizes current research documenting the medical needs of young adult survivors, their suboptimal compliance with recommended follow-up, and the rationale, essential functions, current models, and innovative approaches for transition of follow-up care.
Systematic health care transition constitutes the standard of care for young adult survivors of childhood cancer. In developing a transitional care program, it is necessary to consider the scope of services to be provided, available resources, and other local exigencies that help determine the optimal model for use. Additional research is needed to improve health services delivery to this population. Effective advocacy is needed, particularly in the United States, to ensure the availability of uninterrupted health insurance coverage for survivorship services in young adulthood.
儿童期和青少年期癌症的青年幸存者是一个不断增长的患者群体,其中许多人仍然面临癌症治疗潜在严重并发症的终身风险。然而,研究表明,这些年长的幸存者中有许多人健康相关知识不足,也没有参与推荐的健康促进和筛查实践,这些实践本可以改善他们的长期预后。本综述的目的是通过讨论从儿科到以成人为主的生存服务的正式过渡护理如何帮助应对这些年轻人独特的医疗、发育和心理社会挑战来解决这些差异。
文献回顾和讨论。
本文总结了目前的研究,这些研究记录了青年幸存者的医疗需求、他们对推荐的后续治疗的不合规情况,以及过渡性护理的基本原理、基本功能、现有模式和创新方法。
系统的医疗保健过渡是儿童癌症青年幸存者的护理标准。在制定过渡性护理计划时,有必要考虑要提供的服务范围、可用资源以及其他地方的紧急情况,这有助于确定最佳的使用模式。需要进一步的研究来改善这一人群的医疗服务提供。需要进行有效的宣传,特别是在美国,以确保在青年期提供生存服务的医疗保险覆盖的连续性。