Fitch Margaret I, Steele Rose
Oncology Nursing and Supportive Care, Toronto-Sunnybrook Regional Cancer Centre.
Can Oncol Nurs J. 2010 Winter;20(1):15-22. doi: 10.5737/1181912x2011522.
The main purpose of this study was to identify the range of supportive care needs of patients diagnosed with lung cancer who attended an outpatient, regional cancer centre. Lung cancer has more than a physical impact on those who are diagnosed with the disease, yet relatively little has been reported on their needs beyond those for physical symptom management. A total of 88 patients participated in this study by completing a self-report questionnaire. The data provided clear indication that a range of needs, both physical and psychosocial, exist for this group of patients and, furthermore, remain unmet. Lack of energy, pain, and concern about those close to them were reported most frequently. Patients also expressed distress because of difficulty managing their needs and many indicated wanting help to cope with the challenges they were experiencing. However, a sizeable proportion (45% to 58%) indicated they did not want help from staff at the cancer centre for some need items despite considerable distress arising from those remaining unmet (e.g., lack of energy, fears about cancer spreading, not being able to do the things you used to do). Suggestions for practice and future research are offered to improve the care for this group of patients.
本研究的主要目的是确定在一家地区性癌症中心门诊就诊的肺癌患者的支持性护理需求范围。肺癌对确诊患者的影响不止于身体方面，然而，除了身体症状管理需求外，关于他们其他需求的报道相对较少。共有88名患者通过填写一份自我报告问卷参与了本研究。数据清楚地表明，这群患者存在一系列身体和心理社会需求，而且这些需求仍未得到满足。精力不足、疼痛以及对身边亲人的担忧是最常被提及的。患者还因难以应对自身需求而表达了痛苦，许多患者表示希望得到帮助以应对他们所面临的挑战。然而，相当一部分患者（45%至58%）表示，尽管某些未满足的需求（如精力不足、担心癌症扩散、无法做曾经能做的事情）给他们带来了相当大的痛苦，但他们并不希望癌症中心的工作人员在某些需求方面提供帮助。本文还提出了实践建议和未来研究方向，以改善对这群患者的护理。
