Fitch Margaret I
Sunnybrook Odette Cancer Centre, 2075 Bayview Avenue, T-wing, Toronto, ON M4N 3M5.
Can Oncol Nurs J. 2012 Spring;22(2):84-100. doi: 10.5737/1181912x2228491.
Many patients with advanced cancer have numerous medical complications and multiple sites involving metastases that cause distressing symptoms. Radiotherapy is often used for the palliative treatment of these patients, especially those with bone metastases. There is a lack of information about the types of supportive care needs these patients experience, the services that are available for them, and whether people want help with their needs. The main purpose of this cross-sectional, descriptive study was to identify the supportive care needs (physical, emotional, social, spiritual, psychological, and practical) of patients with advanced cancer who attended the Palliative Radiation Therapy Rapid Response Clinic (PRTRRC) at a comprehensive, ambulatory cancer centre. A second purpose was to determine if patients wanted assistance in meeting those needs. A total of 69 patients participated in this study by completing a self-report questionnaire. The data provided a clear indication that a range of supportive care needs remained unmet for this patient group. Lack of energy, pain, and concerns about the worries of those close to them were the most frequently reported needs. Additionally, patients expressed a range of difficulty managing needs and many of these patients desired help to manage the identified needs. However, despite this reality, significant numbers of patients indicated they did not wish to have assistance with some needs. Suggestions for practice and future research are offered to assist oncology nurses in providing supportive care to these patients.
许多晚期癌症患者有大量的医学并发症以及多个转移部位，这些会导致令人痛苦的症状。放射治疗常被用于这些患者的姑息治疗，尤其是那些有骨转移的患者。对于这些患者所经历的支持性护理需求的类型、可供他们使用的服务，以及人们是否希望满足其需求方面的帮助，信息较为匮乏。这项横断面描述性研究的主要目的是确定在一家综合性门诊癌症中心的姑息性放射治疗快速反应诊所（PRTRRC）就诊的晚期癌症患者的支持性护理需求（身体、情感、社会、精神、心理和实际需求）。第二个目的是确定患者是否希望在满足这些需求方面得到帮助。共有69名患者通过填写一份自我报告问卷参与了本研究。数据清楚地表明，该患者群体的一系列支持性护理需求仍未得到满足。缺乏精力、疼痛以及对身边亲人担忧的顾虑是最常报告的需求。此外，患者表达了在管理需求方面存在一系列困难，并且这些患者中的许多人希望得到帮助来管理已确定的需求。然而，尽管存在这一现实情况，仍有相当数量的患者表示他们不希望在某些需求上得到帮助。本文提供了实践建议和未来研究方向，以协助肿瘤护士为这些患者提供支持性护理。
