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一项针对与精神分裂症患者共同生活的退伍军人和普通民众亲属的在线心理教育计划的概念验证试验。

A proof of concept trial of an online psychoeducational program for relatives of both veterans and civilians living with schizophrenia.

机构信息

VA Greater Los Angeles Healthcare System at West Los Angeles, CA 90073, USA.

出版信息

Psychiatr Rehabil J. 2010 Spring;33(4):278-87. doi: 10.2975/33.4.2010.278.287.

Abstract

OBJECTIVES

Family psychoeducation has been found to reduce relapse in schizophrenia but penetration rates are low. In this study, we evaluate the feasibility of an online multifamily group program for relatives of persons with schizophrenia that can be accessed from participants' homes.

METHODS

We explored participation rates and evaluations of a 12-month multimodal website intervention. Using a quasi-experimental design, we compared illness outcomes (factors on the Brief Psychiatric Rating Scale, hospitalizations) of persons with diagnosed schizophrenia, and relative distress outcomes (somatic concerns and anxiety/depression subscales on the Brief Symptom Inventory) from relatives participating in the intervention (n = 26) to archival data we had from comparable dyads who received customary care (n = 16).

RESULTS

The majority of participants in the program attended more than half the core online support sessions, expressed high levels of satisfaction, and found the technology easy to access. There appeared to be little impact of online participation on clinical status of persons with schizophrenia or relatives' distress, although there was a trend for fewer hospitalizations in the online group. Small sample size is a factor in interpreting results.

CONCLUSIONS

Online interventions for relatives of persons with schizophrenia, while feasible, present unique challenges. These include 1) assuring access to the intervention in populations who do not own a computer; 2) addressing privacy concerns; 3) overcoming the special challenges of conducting groups in real time; 4) managing emergent situations adequately; and 5) questions about efficacy.

摘要

目的

家庭心理教育已被证明可降低精神分裂症的复发率,但普及率较低。本研究评估了一种可从参与者家中访问的针对精神分裂症患者亲属的在线多家庭团体计划的可行性。

方法

我们探讨了为期 12 个月的多模式网站干预措施的参与率和评估。使用准实验设计,我们比较了参与干预(n=26)的精神分裂症患者的疾病结局(简明精神病评定量表上的因素,住院情况)和亲属的相对困扰结局(简明症状量表上的躯体问题和焦虑/抑郁子量表)与我们从接受常规护理的可比对子(n=16)的档案数据。

结果

该计划的大多数参与者参加了一半以上的核心在线支持课程,表达了高度的满意度,并发现该技术易于访问。在线参与对精神分裂症患者或亲属的困扰的临床状况似乎几乎没有影响,尽管在线组的住院人数呈下降趋势。样本量小是解释结果的一个因素。

结论

针对精神分裂症患者亲属的在线干预措施虽然可行,但存在独特的挑战。这些挑战包括:1)确保在没有计算机的人群中能够获得干预措施;2)解决隐私问题;3)克服实时进行小组的特殊挑战;4)充分处理紧急情况;以及 5)关于疗效的问题。

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