Osugi Yuko, Higashiura Takeshi, Okada Keiko, Park Young Dong, Hara Junichi
Dept. of Pediatric Hematology/Oncology, Pediatric Medical Center, Osaka City General Hospital.
Gan To Kagaku Ryoho. 2009 Dec;36 Suppl 1:69-71.
We cared 28 life limiting children with cancer in the past five years. Two patients died at home and the rest of them died at hospitals. Most children older than 11 years understood their disease. On the other hand, poor prognosis at the end stage was not noticed precisely to most of them. We recommended that they spend time with their families as long as possible. There were some problems associated with going back home. Those were as follows: a decision making was difficult for the patients because some of them were very young or unconcious not awake, not enough time for the patient's family to get ready for a home palliative care, or the patients who need frequent transfusions. In palliative care of children with the end of life stage cancer, it is essential that more co-medicals and other professions should be involved in order to strive for a good quality of life.
在过去五年里,我们照料了28名患有癌症且生命有限的儿童。两名患者在家中去世,其余的在医院去世。大多数11岁以上的儿童了解自己的病情。另一方面,他们中的大多数人并未准确意识到疾病末期的预后很差。我们建议他们尽可能长时间地与家人共度时光。回家存在一些问题。具体如下:由于一些患者非常年幼或无意识(未清醒),患者难以做出决定;患者家属没有足够时间为家庭姑息治疗做好准备;或者患者需要频繁输血。在终末期癌症儿童的姑息治疗中,至关重要的是要有更多的医护人员和其他专业人员参与进来,以努力实现良好的生活质量。