Department of Medical Psychology, University Hospital of Muenster, Germany.
Pediatr Nephrol. 2010 Aug;25(8):1477-85. doi: 10.1007/s00467-010-1540-z. Epub 2010 May 12.
Health-related quality of life (HRQOL) in parents of children suffering from renal disease is often diminished by the illness burden experienced in daily life and by unfavorable ways of coping. Our aim was to examine the relationship between psychosocial strains perceived by parents, their ways of coping, and HRQOL. In an anonymous cross-sectional study, parents completed a questionnaire concerning psychosocial strains, coping strategies, and HRQOL, as well as sociodemographic and illness parameters. Study participants were recruited in two outpatient dialysis centers. Participating in the study were 195 parents (105 mothers, 90 fathers; age 43 +/- 8 years; representing 108 families) of children suffering from renal disease (age 12 +/- 5 years). Parents of children with chronic renal failure reported moderate HRQOL with parents of children undergoing dialysis experiencing more limitations in quality of life than parents of children living with a kidney graft and parents of children undergoing conservative treatment. Mothers experienced lower HRQOL and higher psychosocial strains than fathers. HRQOL was predicted by the coping strategies "focusing on child" (beta = -0.25), "improving marital relationship" (beta = 0.24), "seeking social support" (beta = -0.22) and "self-acceptation and growth" (beta =0 .19) as well as parents' perceived limitation by illness in daily life (beta = -0.15; explained variance 57%). In the comprehensive care for families with a child suffering from a renal disease, screening for psychosocial strains and ways of coping, along with applying interventions to strengthen adaptive coping strategies, may be a preventative means of improving parents' quality of life.
父母的健康相关生活质量（HRQOL）在日常生活中经常受到孩子患病的负担和不利的应对方式的影响而降低。我们的目的是检查父母所感受到的心理社会压力、应对方式与 HRQOL 之间的关系。在一项匿名的横断面研究中，父母填写了一份问卷，内容涉及心理社会压力、应对策略和 HRQOL 以及社会人口学和疾病参数。研究参与者是在两个门诊透析中心招募的。参与研究的是 195 名患有肾脏疾病的儿童的父母（105 名母亲，90 名父亲；年龄 43 +/- 8 岁；代表 108 个家庭）。患有慢性肾衰竭的儿童的父母报告 HRQOL 中等，接受透析的儿童的父母比接受肾移植和接受保守治疗的儿童的父母在生活质量方面受到更多限制。母亲的 HRQOL 比父亲低，心理社会压力比父亲大。HRQOL 可由应对策略“关注孩子”（β = -0.25）、“改善婚姻关系”（β = 0.24）、“寻求社会支持”（β = -0.22）和“自我接纳和成长”（β = 0.19）以及父母对疾病对日常生活的限制（β = -0.15；解释方差 57%）来预测。在对患有肾脏疾病的儿童的家庭进行全面护理时，筛查心理社会压力和应对方式，并采取干预措施来加强适应性应对策略，可能是改善父母生活质量的预防手段。
