Bottos A M, Zanon E, Sartori M T, Girolami A
Department of Medical and Surgical Sciences, Haemophilia Centre, Second Chair of Medicine, University of Padua Medical School, Padua, Italy.
Haemophilia. 2007 May;13(3):305-10. doi: 10.1111/j.1365-2516.2006.01428.x.
Parents of children affected by haemophilia must face, often without prior knowledge, the difficult challenge imposed by such a pathology. To satisfy the need of information, guideline and psychological support for a better quality of life, 30 parents with haemophiliac children have participated in a programme of counselling and psychological support. Such a programme has the aim of guiding the group trough a process of discovery, comparison and personal growth and stimulating adaptive processes of problem-solving and decision-making. The aim of this paper was to verify how the programme influenced coping strategies and other psychological constructs such as depression and anxiety. Subjects of this study were administered the following psychological tests: COPE (coping, orientation to problems experienced), BDI (beck depression inventory), STAI-Y form (state-trait anxiety inventory) at the beginning and at the end of the programme. The results show that by the end of the programme subjects are characterized by a greater use of problem-focused coping strategies, typical of individuals who think that the situation is susceptible to change, and a minor use of emotion-focused coping strategies, related to individuals who regard the situation as immutable. The use of avoidance -focused coping strategies seems to remain at the same level even if it was low. Also the other psychological aspects investigated, namely depression and anxiety, did receive a positive influence. The results show how significant such programme has been for parents.
血友病患儿的父母往往在毫无预先了解的情况下，就得面对这种病症带来的艰巨挑战。为满足信息需求、获取指导并得到心理支持以提升生活质量，30位血友病患儿的家长参与了一项咨询与心理支持项目。该项目旨在引导这个群体经历一个发现、比较和个人成长的过程，并激发解决问题和决策的适应性过程。本文的目的是验证该项目如何影响应对策略以及其他心理结构，如抑郁和焦虑。本研究的受试者在项目开始和结束时接受了以下心理测试：COPE（应对方式，针对所经历问题的取向）、BDI（贝克抑郁量表）、STAI-Y型（状态-特质焦虑量表）。结果显示，到项目结束时，受试者的特点是更多地使用以问题为导向的应对策略，这是那些认为情况易于改变的个体的典型特征，而较少使用以情绪为导向的应对策略，这与那些认为情况不可改变的个体有关。即使以回避为导向的应对策略的使用程度较低，但其使用情况似乎保持在同一水平。此外，所调查的其他心理方面，即抑郁和焦虑，也受到了积极影响。结果表明该项目对家长意义重大。
