Brunel University, School of Health Sciences and Social Care, Mary Seacole Building, Uxbridge UB8 3PH, United Kingdom.
Disabil Rehabil. 2011;33(4):310-8. doi: 10.3109/09638288.2010.490865. Epub 2010 Jun 4.
The emotional distress caused by pain is one of the most disruptive aspects of living with the condition. This study investigates how individuals experience pain and its consequences for family life and work.
Unstructured interviews, using the 'Framework' approach with topic guide, were recorded and transcribed. Patients were sampled for age, sex, ethnicity and occupation from new referrals with spinal pain (SP) to a rheumatology outpatient clinic. Eleven patients (five males and six females) were interviewed in English (n = 9) or their preferred language (n = 2). Interviews were read in depth twice to identify the topics. Data were extracted in phrases and sentences using thematic content analysis.
Emergent themes reported were relationships with: spouses and partners (n = 7), children/parents (n = 6), with other family and friends (n = 7) and work-related issues (n = 11). Patients valued support from family but expressed concerns about causing them worry. Work-related issues included physical and emotional efforts to keep working when in pain, fear of losing employment and financial problems.
Patients expressed anxiety about how their pain affected other family members, regret at losing full work capacity and worry about financial consequences. The lived experience of chronic SP has ramifications that go beyond the individual, reaching into work and social relationships.
疼痛引起的情绪困扰是患病者最难以承受的方面之一。本研究调查了个体如何体验疼痛，以及疼痛对家庭生活和工作的影响。
采用无结构访谈，使用“框架”方法和主题指南，对来自风湿病门诊新转诊的脊柱疼痛（SP）患者进行访谈，根据年龄、性别、种族和职业进行抽样。11 名患者（男性 5 名，女性 6 名）用英语（n=9）或他们首选的语言（n=2）进行访谈。对访谈进行了两次深入阅读，以确定主题。使用主题内容分析，以短语和句子的形式提取数据。
报告的主要主题包括与：配偶和伴侣（n=7）、子女/父母（n=6）、其他家庭成员和朋友（n=7）以及工作相关问题（n=11）的关系。患者重视家人的支持，但表示担心会给他们带来困扰。工作相关问题包括在疼痛时努力保持工作、害怕失去工作和经济问题。
患者对疼痛如何影响其他家庭成员表示焦虑，对失去全部工作能力感到遗憾，并担心经济后果。慢性 SP 的实际经历不仅对个人，而且对工作和社会关系都有影响。
