Department of Paediatrics, Addenbrooke's Hospital, University of Cambridge, Level 8, Box 116, Hills Road, Cambridge, CB2 0QQ, UK.
Best Pract Res Clin Endocrinol Metab. 2010 Apr;24(2):187-95. doi: 10.1016/j.beem.2009.11.004.
In 2006, a task force of 50 specialists sponsored by the European Society for Paediatric Endocrinology (ESPE) and the Lawson Wilkins Pediatric Endocrine Society (LWPES) devised a Consensus Statement outlining the recommendations for the management of disorders of sex development (DSDs; then referred to as 'intersex' disorders) as well as proposing a new nomenclature and DSD classification system. In the 2 years subsequent to its publication, the Statement has been widely cited and endorsed in the literature as a model for patient care. In addition, much of the scientific literature incorporates the newly proposed nomenclature and classification system as part of its own discourse. However, without a systematic analysis of the uptake of recommendations of the Statement, it is not possible to make valid conclusions regarding the uptake of the recommendations within clinical practice. Here we discuss the Consensus Statement and its impact with respect to the newly proposed nomenclature and psychosocial management according to a new study following 60 DSD centres throughout Europe. Finally, we discuss future directions for research in the management of DSD, beginning at the moment of disclosure.
2006 年，由欧洲儿科内分泌学会（ESPE）和 Lawson Wilkins 儿科内分泌学会（LWPES）赞助的 50 名专家组成的一个工作组制定了一份共识声明，概述了性发育障碍（DSD；当时称为“间性”障碍）的管理建议，并提出了一个新的命名法和 DSD 分类系统。该声明发表后的 2 年内，已在文献中被广泛引用和认可，作为患者护理的典范。此外，大部分科学文献都将新提出的命名法和分类系统纳入其自身的论述中。然而，如果没有对声明建议的采纳情况进行系统分析，就不可能对临床实践中对建议的采纳情况做出有效的结论。在这里，我们根据一项针对欧洲 60 个 DSD 中心的新研究，讨论共识声明及其对新提出的命名法和心理社会管理的影响。最后，我们讨论了 DSD 管理研究的未来方向，从披露的那一刻开始。
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