School of Nursing, University of Northern British Columbia, Prince George, British Columbia, Canada
School of Nursing, University of Northern British Columbia, Prince George, British Columbia, Canada.
BMJ Open. 2022 Apr 8;12(4):e055759. doi: 10.1136/bmjopen-2021-055759.
To: (1) complete an integrative literature review of transition studies that focus on individuals with intersex traits; (2) conduct an environmental scan of the current resources (practice guidelines, policies and procedures) used by healthcare providers working with Canadians with intersex traits; (3) investigate the experiences of Canadians with intersex traits in their healthcare transitions across the lifespan and (4) assess the understanding of healthcare providers about these transitions.
A qualitative prospective community participation study was conducted. It used mixed methods including an environmental scan and semistructured engagement sessions.
The environmental scan examined resources available throughout Canada. The engagement sessions took place in British Columbia and Ontario, Canada.
Sixteen participants were recruited. These included 13 individuals with intersex traits (a heterogeneous group of congenital conditions affecting the development of sex characteristics) and three caregivers.
Mixed methods included an integrated literature review, environmental scan and qualitative approaches developed in collaboration with community partners.
The literature review identified gaps in transition care for individuals with intersex traits. The environmental scan uncovered no specific resources used by healthcare providers working with patients with intersex traits, though several general guidelines were used. Engaging providers in the study was problematic. Thematic analysis generated three main themes that emerged from the engagement sessions: (1) transition is a lifespan activity; (2) building personal agency is valuable and (3) well-being promotion is an application of health literacy.
Transition resources for individuals living in Canada with intersex are scarce. Transitions happen across the lifespan with ownership of thought and actions seen as acts of personal agency. Health literacy skills and knowledge change with increased age, yet the primary source of knowledge often remained important in the individual's autobiographical self.
（1）综合文献综述关注具有间性特征个体的过渡研究；（2）对从事具有间性特征的加拿大人的医疗保健提供者使用的当前资源（实践指南、政策和程序）进行环境扫描；（3）调查跨生命周期具有间性特征的加拿大人在其医疗保健过渡中的经历；（4）评估医疗保健提供者对这些过渡的理解。
进行了一项定性前瞻性社区参与研究。它使用了混合方法，包括环境扫描和半结构化参与会议。
环境扫描检查了加拿大各地提供的资源。参与会议在加拿大不列颠哥伦比亚省和安大略省举行。
招募了 16 名参与者。这些参与者包括 13 名具有间性特征的个体（一组影响性特征发育的先天性疾病）和 3 名照顾者。
混合方法包括综合文献综述、环境扫描和与社区合作伙伴合作开发的定性方法。
文献综述发现间性特征个体的过渡护理存在差距。环境扫描未发现从事间性特征患者护理的医疗保健提供者使用的特定资源，尽管使用了一些一般指南。让提供者参与研究存在问题。主题分析从参与会议中产生了三个主要主题：（1）过渡是一个贯穿一生的活动；（2）建立个人代理是有价值的；（3）促进健康是健康素养的应用。
在加拿大生活的具有间性特征的个体的过渡资源稀缺。过渡发生在整个生命周期中，思想和行动的所有权被视为个人代理的行为。健康素养技能和知识随着年龄的增长而变化，但主要知识来源在个体的自传自我中往往仍然很重要。
