University of Social Welfare and Rehabilitation Sciences, 1985713831 Tehran, Iran.
Int Nurs Rev. 2010 Jun;57(2):247-53. doi: 10.1111/j.1466-7657.2009.00786.x.
Stroke is a major cause of disability worldwide. It is a life-threatening and life-altering event, which leaves many physical and mental disabilities, thus creating major social and economic burdens. Experiencing a stroke and its aftermath can be devastating for patients and their families. In Iran, many services are not available for those who lack property; this may result in many difficulties and long-term problems for stroke survivors and their family members who are usually the main caregivers in Iranian cultural. Despite its effect on their lives, little is known about how the survivors perceive stroke in the Iranian context, therefore, knowing more about this process may enhance problem identification and problem solving.
To illuminate how stroke survivors experience and perceive life after stroke.
A grounded theory approach was recruited using semi-structured interviews with 10 stroke survivors.
The survivors perceived that inadequate social and financial support, lack of an educational plan, lack of access to rehabilitative services, physical and psychological problems led them to functional disturbances, poor socio-economical situation and life disintegration. The core concept of life after stroke was functional disturbances.
The study shows the need to support the stroke survivors in their coping process with their new situation by providing appropriate discharge plans, social and financial support, social insurances and training programmes for the stroke survivors and their families.
中风是全球范围内导致残疾的主要原因。它是一种危及生命和改变生活的事件，会导致许多身体和精神残疾，从而给社会和经济带来重大负担。经历中风及其后果对患者及其家属来说可能是毁灭性的。在伊朗，许多服务都不提供给没有财产的人；这可能会给中风幸存者及其家属带来许多困难和长期问题，他们通常是伊朗文化中的主要照顾者。尽管中风对他们的生活有影响，但人们对中风幸存者在伊朗背景下如何感知中风知之甚少，因此，更多地了解这个过程可能有助于识别和解决问题。
阐明中风幸存者在中风后的生活经历和感受。
采用半结构式访谈，对 10 名中风幸存者进行了扎根理论方法。
幸存者认为，社会和经济支持不足、缺乏教育计划、无法获得康复服务、身体和心理问题导致他们功能障碍、社会经济状况不佳和生活瓦解。中风后生活的核心概念是功能障碍。
研究表明，有必要通过为中风幸存者及其家属提供适当的出院计划、社会和经济支持、社会保险和培训计划，来支持他们应对新情况的过程。
