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“这让我感到负担沉重”:印度尼西亚中阿塞的中风影响。

'It burdens me': the impact of stroke in central Aceh, Indonesia.

机构信息

School of Health Sciences and Social Care, Brunel University, Uxbridge, UK.

出版信息

Sociol Health Illn. 2012 Jul;34(6):826-40. doi: 10.1111/j.1467-9566.2011.01431.x. Epub 2011 Nov 21.

Abstract

The complex primary and secondary consequences of stroke have often been equated with the concept of biographical disruption, although a number of mediating factors have been identified. However, the research to date is almost exclusively based in western contexts, despite the fact that stroke is increasing most rapidly in low-income and middle-income countries. This research explores the experience of stroke in the rural community of central Aceh, Indonesia. The participants included 11 stroke survivors and 18 carers, with data collected through in-depth interviews and photographic facilitated interviews, supported with participant observation over a nine month period. The participants discussed and illustrated the disruptive result of their stroke, but for most, their ability to maintain religious duties and contribute to their family resulted in a form of biographical continuity. Their strategies and challenges are discussed alongside the implications for care in this context.

摘要

中风的复杂原发性和继发性后果通常与传记中断的概念等同,尽管已经确定了许多中介因素。然而,迄今为止的研究几乎完全基于西方背景,尽管中风在低收入和中等收入国家的发病率增长最快。本研究探讨了印度尼西亚中阿塞中风患者在农村社区的经历。参与者包括 11 名中风幸存者和 18 名护理人员,通过深入访谈和摄影辅助访谈收集数据,并在九个月的时间内进行了参与者观察。参与者讨论并说明了中风对他们的破坏性影响,但对大多数人来说,他们能够履行宗教职责并为家庭做出贡献,这导致了一种传记的连续性。讨论了他们的策略和挑战以及在这种情况下护理的影响。

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