Department of Physical Medicine and Rehabilitation, Virginia Commonwealth University, Richmond, VA 23219, USA.
NeuroRehabilitation. 2010;27(1):83-93. doi: 10.3233/NRE-2010-0583.
Cross-sectional.
PARTICIPANTS/METHODS: 37 caregivers completed a caregiver needs questionnaire composed of 27 questions (1-5 scale) and 9 sub-scales (emotional, information, economic, community, and household support, respite, physical health, sleep, and psychological health). The Patient Health Questionnaire (PHQ-9) was used to measure caregiver depression, the Zarit Burden Interview (ZBI) measured stress, the Interpersonal Support Evaluation List Short Version (ISEL-12) measured social support, and the Satisfaction With Life Scale (SWLS) was used to assess satisfaction with life.
Information, economic, emotional, community support, and respite needs were most frequently reported among this group of Colombian caregivers. Forty-three percent of the family caregivers reported some level of depression, 68% reported being overwhelmed by their caretaking responsibilities, and 43% reported dissatisfaction with their lives. Information, emotional, economic, physical, sleep, and psychological needs were positively correlated with depression and burden. Those with more household, physical, sleep, economic, and psychological needs had less satisfaction with life and social support. Caregivers with more community and respite needs had less social support, while those with more emotional needs had less satisfaction with life. Caregivers with more respite needs had more burden and those with more household needs had more depression.
Approximately half of the sample reports some level of burden, depression, or being dissatisfied with life. Psychosocial functioning was related to various family needs. Further longitudinal research is needed to determine whether caregivers with more needs report worse psychosocial functioning or if those with worse psychosocial functioning report more needs.
1）确定哥伦比亚内瓦市一组脊髓损伤患者家属照顾者最常见的需求；2）描述照顾者的心理社会功能；3）研究照顾者需求与照顾者心理社会功能之间的关系。
横断面研究。
参与者/方法：37 名照顾者完成了一份照顾者需求问卷，该问卷由 27 个问题（1-5 分制）和 9 个分量表（情感、信息、经济、社区和家庭支持、休息、身体健康、睡眠和心理健康）组成。使用患者健康问卷（PHQ-9）来衡量照顾者的抑郁程度，使用 Zarit 负担量表（ZBI）来衡量压力，使用人际支持评估清单简短版（ISEL-12）来衡量社会支持，使用生活满意度量表（SWLS）来评估对生活的满意度。
在这群哥伦比亚照顾者中，信息、经济、情感、社区支持和休息需求最常被报告。43%的家庭照顾者报告存在一定程度的抑郁，68%的照顾者表示他们的照顾责任过重，43%的照顾者对自己的生活不满意。信息、情感、经济、身体、睡眠和心理需求与抑郁和负担呈正相关。那些有更多家庭、身体、睡眠、经济和心理需求的人对生活和社会支持的满意度较低。有更多社区和休息需求的照顾者社会支持较少，而有更多情感需求的照顾者对生活的满意度较低。有更多休息需求的照顾者负担较重，有更多家庭需求的照顾者抑郁程度较高。
大约一半的样本报告存在一定程度的负担、抑郁或对生活不满。心理社会功能与各种家庭需求有关。需要进一步的纵向研究来确定是否有更多需求的照顾者报告更差的心理社会功能，或者是否心理社会功能较差的照顾者报告更多的需求。
