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Evaluating neurorehabilitation: lessons from routine data collection.评估神经康复:常规数据收集的经验教训。
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Reducing quantitative data errors: tips for clinical researchers.减少定量数据误差:临床研究人员须知
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The creation of a large UK-based multicentre cohort of HIV-infected individuals: The UK Collaborative HIV Cohort (UK CHIC) Study.建立一个以英国为基地的大型多中心艾滋病毒感染者队列:英国协作艾滋病毒队列(UK CHIC)研究。
HIV Med. 2004 Mar;5(2):115-24. doi: 10.1111/j.1468-1293.2004.00197.x.
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Using clinical databases in practice.在实践中使用临床数据库。
BMJ. 2003 Jan 4;326(7379):2-3. doi: 10.1136/bmj.326.7379.2.
7
Methodology to improve data quality from chart review in the managed care setting.在管理式医疗环境中提高病历审查数据质量的方法。
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8
Maintaining data integrity in randomized clinical trials.在随机临床试验中维护数据完整性。
Nurs Res. 2002 Mar-Apr;51(2):129-33. doi: 10.1097/00006199-200203000-00010.
9
How well does chart abstraction measure quality? A prospective comparison of standardized patients with the medical record.病历摘要对质量的衡量效果如何?标准化患者与病历的前瞻性比较。
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10
Quality control in multicentric clinical trials. An experience of the EORTC Gynecological Cancer Cooperative Group.
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评估一个大型艾滋病毒和艾滋病观察队列中数据收集的质量。

Measuring the Quality of Data Collection in a Large Observational Cohort of HIV and AIDS.

作者信息

Hillebregt Mariska, de Lange-de Klerk Elly, Knol Dirk, de Wolf Frank, Smit Colette

机构信息

HIV Monitoring Foundation, Amsterdam, The Netherlands.

出版信息

Open AIDS J. 2010 May 5;4:96-102. doi: 10.2174/1874613601004010096.

DOI:10.2174/1874613601004010096
PMID:20657828
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2905776/
Abstract

The aim of this study was to examine the quality of data collection by studying the validity of collected data. Data were extracted from the clinic charts of two anonymous outpatients by 38 data collectors. A standard for the data to be collected was determined (168 items). The validity was measured by comparing the collected items with the standard; in this way, the percentages of the collected items that were 'correct' could be calculated. The percentage 'correct' was higher for clinic chart 1 (mean: 83% correct, SD 7%) than for clinic chart 2 (mean: 78% correct, SD 8%). All categories contained incorrectly collected data. These data were divided into missing data, incorrect start-stop dates, and surplus collected data. Almost all start-stop dates would change into 'correct' if 'monthyear' was considered correct (instead of the standard 'daymonthyear'). Not all data collectors used specific protocols, and sources other than the written comments were not always checked. This study shows that a high proportion of data was correctly collected. However, the collection of start-stop dates was not optimal, and the collected data included surplus and missing data. Data collectors should be more knowledgeable about HIV disease and trained in the use of difficult protocols, so that they can better recognize what data to collect and how it should be collected. Among physicians, there should be more agreement about what information to record in the charts, to facilitate data extraction for data collectors.

摘要

本研究的目的是通过研究收集数据的有效性来检验数据收集的质量。38名数据收集者从两名匿名门诊患者的临床病历中提取数据。确定了要收集的数据标准(168项)。通过将收集到的项目与标准进行比较来衡量有效性;通过这种方式,可以计算出“正确”收集项目的百分比。临床病历1的“正确”百分比更高(平均:83%正确,标准差7%),高于临床病历2(平均:78%正确,标准差8%)。所有类别都包含收集错误的数据。这些数据分为缺失数据、起止日期错误和多余收集的数据。如果将“月年”视为正确(而不是标准的“日月年”),几乎所有的起止日期都将变为“正确”。并非所有数据收集者都使用特定的方案,并且并非总是检查书面评论以外的来源。本研究表明,很大一部分数据被正确收集。然而,起止日期的收集并不理想,收集到的数据包括多余和缺失的数据。数据收集者应该对艾滋病有更多的了解,并接受使用复杂方案的培训,以便他们能够更好地识别要收集的数据以及如何收集这些数据。在医生中,应该就病历中记录哪些信息达成更多共识,以便于数据收集者提取数据。