Faculty of Sciences, Engineering & Health, CQ University, Locked Bag 3333, Bundaberg, Qld, Australia.
Int Wound J. 2010 Dec;7(6):456-65. doi: 10.1111/j.1742-481X.2010.00715.x.
Malignant wounds occur infrequently, but are typically described as devastating and overwhelming. However, there has been little formalised research, and the vast majority of existing malignant wound literature comprises reports of health care professionals from their management of the physical symptoms. Few studies have investigated the lived experience from the perspectives of patients and nurses and none have investigated the experiences of lay caregivers caring for a patient with a malignant wound. As a result, there has been little mention in existing literature of the non physical issues associated with malignant wounds or how they might be addressed. The purpose of this study was to address this gap in knowledge by investigating the lived experience of malignant wounds from the perspectives of those living it. In-depth interviews were conducted with patients, caregivers and nurses. The data were analysed thematically within a hermeneutic phenomenological methodology to show four themes: (i) malodour; (ii) new mode of being-in-the-world; (iii) still room for hope and (iv) enduring memories. Although this study confirmed previous findings that malodour was one of the worst aspects of malignant wounds, it was significant that the other three themes occurred in the previously largely overlooked psychosocial domain.
恶性伤口并不常见，但通常被描述为具有破坏性和压倒性。然而，针对恶性伤口的研究很少，并且现有的绝大多数恶性伤口文献都只是医护人员对其身体症状进行管理的报告。很少有研究从患者和护士的角度调查生活体验，也没有研究调查照顾恶性伤口患者的非专业护理人员的体验。因此，现有文献中很少提到与恶性伤口相关的非身体问题，也很少提到如何解决这些问题。本研究旨在通过从患者、护理人员和护士的角度调查恶性伤口的生活体验来填补这一知识空白。对患者、护理人员和护士进行了深入的访谈。在解释学现象学方法的框架内对数据进行了主题分析，展示了四个主题：（i）恶臭；（ii）新的在世模式；（iii）仍有希望；（iv）持久的记忆。尽管这项研究证实了先前的研究结果，即恶臭是恶性伤口最糟糕的方面之一，但重要的是，其他三个主题出现在以前在很大程度上被忽视的心理社会领域。
