Thorne S, Oliffe J, Kim-Sing C, Hislop T G, Stajduhar K, Harris S R, Armstrong E-A, Oglov V
School of Nursing, University of British Columbia, Vancouver, BC, Canada.
Eur J Cancer Care (Engl). 2010 Nov;19(6):746-54. doi: 10.1111/j.1365-2354.2009.01125.x.
With a diagnosis of cancer, life changes for patients in a profound manner. The window of time known as cancer diagnosis is one of considerable turbulence and distress for patients. Therefore, diagnosis constitutes a time during which communication with healthcare professionals is of particular importance in setting the stage for the way cancer illness will be experienced. Our research explores communications throughout the cancer trajectory from the perspective of patients themselves. We are following a sample of 60 cancer patients, representing a range of tumour sites, from the early diagnostic period through to recovery, chronic, or advanced disease. Using interpretive description analysis techniques, we document patterns and themes related to various components of the cancer journey. In this paper, we focus on themes related to perceived helpful communication during the diagnosis experience as reported by our study participants both at the time of being newly diagnosed patients, and as they reflect on that period 12 months later. These findings illuminate experiential issues of importance to patients in relation to cancer care communication and the manner in which helpful communications during this sensitive time may facilitate the subsequent experience living with and obtaining care for cancer.
被诊断出患有癌症后，患者的生活发生了深刻的变化。被称为癌症诊断的这段时间，对患者来说充满了动荡和痛苦。因此，诊断阶段是与医疗保健专业人员沟通尤为重要的时期，它为患者体验癌症疾病奠定了基础。我们的研究从患者自身的角度探索了整个癌症病程中的沟通情况。我们正在跟踪60名癌症患者的样本，这些患者代表了一系列肿瘤部位，从早期诊断阶段一直到康复期、慢性病期或晚期。我们使用解释性描述分析技术，记录与癌症病程各个组成部分相关的模式和主题。在本文中，我们关注的是研究参与者在刚被诊断为患者时以及12个月后回顾那段时期时所报告的与诊断经历中被认为有帮助的沟通相关的主题。这些发现揭示了与癌症护理沟通相关的、对患者来说很重要的体验问题，以及在这个敏感时期有帮助的沟通可能促进后续与癌症共存及获得癌症护理体验的方式。
