Scharff Darcell P, Mathews Katherine J, Jackson Pamela, Hoffsuemmer Jonathan, Martin Emeobong, Edwards Dorothy
Department of Community Health and Associate Dean, Saint Louis University School of Public Health, 3545 Lafayette Ave, St Louis, MO 63104, USA.
J Health Care Poor Underserved. 2010 Aug;21(3):879-97. doi: 10.1353/hpu.0.0323.
This paper describes results of a qualitative study that explored barriers to research participation among African American adults. A purposive sampling strategy was used to identify African American adults with and without previous research experience. A total of 11 focus groups were conducted. Groups ranged in size from 4-10 participants (N=70). Mistrust of the health care system emerged as a primary barrier to participation in medical research among participants in our study. Mistrust stems from historical events including the Tuskegee syphilis study and is reinforced by health system issues and discriminatory events that continue to this day. Mistrust was an important barrier expressed across all groups regardless of prior research participation or socioeconomic status. This study illustrates the multifaceted nature of mistrust, and suggests that mistrust remains an important barrier to research participation. Researchers should incorporate strategies to reduce mistrust and thereby increase participation among African Americans.
本文描述了一项定性研究的结果，该研究探讨了非裔美国成年人参与研究的障碍。采用了目的抽样策略来确定有和没有先前研究经验的非裔美国成年人。总共进行了11个焦点小组讨论。小组规模从4至10名参与者不等（N = 70）。对医疗保健系统的不信任成为我们研究参与者参与医学研究的主要障碍。不信任源于包括塔斯基吉梅毒研究在内的历史事件，并因至今仍存在的卫生系统问题和歧视性事件而加剧。无论先前是否参与研究或社会经济地位如何，不信任都是所有小组表达的一个重要障碍。这项研究说明了不信任的多面性，并表明不信任仍然是参与研究的一个重要障碍。研究人员应采用策略来减少不信任，从而增加非裔美国人的参与度。
