Flinders Human Behaviour and Health Research Unit, Flinders University, GPO Box 2100, Adelaide, SA 5001, Australia.
Patient Educ Couns. 2011 Aug;84(2):e5-8. doi: 10.1016/j.pec.2010.07.008. Epub 2010 Aug 11.
While self-management may be beneficial for many patients it assumes and encourages a particular conception of responsibility and self-management that may not fit with all patients' experience of their chronic conditions and their management. It therefore warrants further examination.
We examine the concept of self-management and responsibility from a range of standpoints, focusing on the Australian context.
Attempts to meet people's needs run the risk of imposing specific conceptions of how people should live their lives. While self-management appears to be consistent with placing patients' needs, values and priorities at the heart of healthcare, ill-defined assumptions about responsibility may confound these goals.
Reflection on social determinants of health, the context in which patients seek self-management support from health services, and how their needs and preferences are listened to by health professionals, is critical for the collaborative self-management partnership between them to be effectively realized.
Providing services without reflecting on the meaning of self-management for the person with chronic conditions creates unintended assumptions about responsibility, engagement and care provision which may serve to alienate and further stigmatise some patients. Often, these are the very patients with complex needs who need such service support the most.
尽管自我管理可能对许多患者有益,但它假定并鼓励了一种特定的责任和自我管理观念,而这种观念可能并不符合所有患者对其慢性疾病及其管理的体验。因此,有必要进一步研究。
我们从多个角度审视自我管理和责任的概念,重点关注澳大利亚的背景。
满足人们需求的尝试有可能会对人们应该如何生活的具体观念产生影响。虽然自我管理似乎符合将患者的需求、价值观和优先事项置于医疗保健核心的原则,但对责任的定义不明确的假设可能会使这些目标变得复杂。
对健康的社会决定因素、患者从卫生服务机构寻求自我管理支持的背景,以及卫生专业人员如何倾听他们的需求和偏好进行反思,对于他们之间实现协作性自我管理伙伴关系至关重要。
在不反思自我管理对慢性病患者的意义的情况下提供服务,会对责任、参与和护理提供产生意想不到的假设,这可能会使一些患者感到疏远和进一步受到歧视。通常,这些都是最需要这种服务支持的具有复杂需求的患者。