Bayliss E A, Bosworth H B, Noel P H, Wolff J L, Damush T M, Mciver L
Clinical Research Unit, Kaiser Permanente, PO Box 378066, Denver, CO 80237-8066, USA.
Chronic Illn. 2007 Jun;3(2):167-75. doi: 10.1177/1742395307081501.
Increasing numbers of persons live with complex chronic medical needs and are at risk for poor health outcomes. These patients require unique self-management support, as they must manage many, often interacting, tasks. As part of a conference on Managing Complexity in Chronic Care sponsored by the Department of Veterans Affairs, a working group was convened to consider self-management issues specific to complex chronic care. In this paper, we assess gaps in current knowledge on self-management support relevant to this population, report on the recommendations of our working group, and discuss directions for future study. We conclude that this population requires specialized, multidimensional self-management support to achieve a range of patient-centred goals. New technologies and models of care delivery may provide opportunities to develop this support. Validation and quantification of these processes will require the development of performance measures that reflect the needs of this population, and research to prove effectiveness.
患有复杂慢性医疗需求的人数日益增加,且面临健康状况不佳的风险。这些患者需要独特的自我管理支持,因为他们必须管理许多往往相互关联的任务。作为美国退伍军人事务部主办的慢性护理复杂性管理会议的一部分,一个工作组被召集起来,以审议复杂慢性护理特有的自我管理问题。在本文中,我们评估了当前与该人群相关的自我管理支持知识方面的差距,报告了我们工作组的建议,并讨论了未来的研究方向。我们得出结论,这一人群需要专门的、多维度的自我管理支持,以实现一系列以患者为中心的目标。新技术和护理提供模式可能为发展这种支持提供机会。对这些过程进行验证和量化将需要制定反映该人群需求的绩效指标,并进行研究以证明其有效性。