Fex Angelika, Flensner Gullvi, Ek Anna-Christina, Söderhamn Olle
Department of Nursing, Health and Culture, University West, Trollhättan, Sweden.
Scand J Caring Sci. 2011 Jun;25(2):253-61. doi: 10.1111/j.1471-6712.2010.00820.x. Epub 2010 Aug 16.
This study aimed to elucidate meanings of health-illness transition experiences among adult persons using advanced medical technology at home. As an increasing number of persons perform self-care while using different sorts of advanced medical technology at home, knowledge about health-illness transition experiences in this situation may be useful to caregivers in supporting these patients. A qualitative design was used. Five women and five men, all of whom performed self-care at home, either using long-term oxygen therapy from a ventilator or oxygen cylinder, or performing peritoneal or haemodialysis, were interviewed. Ethics committee approval was obtained. Informed consent was received from all participants, and ethical issues concerning their rights in research were raised. The interviews were analysed using a phenomenological hermeneutical methodology, including both an inductive and a deductive structural analysis. This method offers possibilities to obtain an increased understanding by uncovering a deeper meaning of lived experiences through interviews transcribed as texts. The health-illness transition for adult persons in this context was found to mean a learning process of accepting, managing, adjusting and improving daily life with technology, facilitated by realizing the gain from technology at home. Further, the meaning of the health-illness transition experience was interpreted as contentment with being part of the active and conscious process towards transcending into a new state of living, in which the individual and the technology were in tune. The healthy transition experience was characterized by human growth and becoming. This study elucidates one meaning of health-illness transition experiences in relation to the use of advanced medical technology on a more generic level, independent of the specific type of technology used. A positive attitude towards technology at home facilitates the transition.
本研究旨在阐明在家中使用先进医疗技术的成年人健康-疾病转变经历的意义。随着越来越多的人在家中使用各种先进医疗技术进行自我护理,了解这种情况下的健康-疾病转变经历可能对护理人员支持这些患者有所帮助。采用了定性设计。对五名女性和五名男性进行了访谈,他们均在家中进行自我护理,有的使用呼吸机或氧气瓶进行长期氧疗,有的进行腹膜透析或血液透析。获得了伦理委员会的批准。所有参与者均已签署知情同意书,并提出了有关他们在研究中的权利的伦理问题。使用现象学诠释学方法对访谈进行了分析,包括归纳和演绎结构分析。这种方法通过揭示作为文本转录的访谈中生活经历的更深层含义,提供了加深理解的可能性。在这种背景下,成年人的健康-疾病转变被发现意味着一个接受、管理、调整和改善借助技术的日常生活的学习过程,这一过程因意识到在家中使用技术的益处而得到促进。此外,健康-疾病转变经历的意义被解释为对成为超越到新的生活状态的积极和有意识过程的一部分感到满足,在这个过程中个人与技术协调一致。健康转变经历的特点是人的成长和蜕变。本研究在更一般的层面上阐明了与使用先进医疗技术相关的健康-疾病转变经历的一种意义,而与所使用的技术的具体类型无关。在家中对技术持积极态度有助于实现这种转变。