National Institute for Health and Welfare, Helsinki, Finland.
Inform Health Soc Care. 2010 Mar;35(2):64-79. doi: 10.3109/17538157.2010.492923.
Data about deliveries, births, mothers and newborn babies are collected extensively to monitor the health and care of mothers and babies during pregnancy, delivery and the post-partum period, but there is no common approach in Europe. We analysed the problems related to using the European data for international comparisons of perinatal health. We made an inventory of relevant data sources in 25 European Union (EU) member states and Norway, and collected perinatal data using a previously defined indicator list. The main sources were civil registration based on birth and death certificates, medical birth registers, hospital discharge systems, congenital anomaly registers, confidential enquiries and audits. A few countries provided data from routine perinatal surveys or from aggregated data collection systems. The main methodological problems were related to differences in registration criteria and definitions, coverage of data collection, problems in combining information from different sources, missing data and random variation for rare events. Collection of European perinatal health information is feasible, but the national health information systems need improvements to fill gaps. To improve international comparisons, stillbirth definitions should be standardised and a short list of causes of fetal and infant deaths should be developed.
广泛收集分娩、出生、母亲和新生儿的数据,以监测妊娠、分娩和产后期间母亲和婴儿的健康和护理情况,但在欧洲没有通用的方法。我们分析了使用欧洲数据进行围产期健康国际比较的相关问题。我们在 25 个欧盟成员国和挪威对相关数据源进行了清查,并使用之前定义的指标清单收集了围产期数据。主要数据源是基于出生和死亡证明的民事登记、医疗出生登记、医院出院系统、先天畸形登记、机密查询和审计。少数国家提供了常规围产期调查或汇总数据收集系统的数据。主要的方法学问题与登记标准和定义的差异、数据收集的覆盖范围、不同来源信息的组合问题、缺失数据以及罕见事件的随机变化有关。收集欧洲围产期健康信息是可行的,但国家卫生信息系统需要改进以填补空白。为了改善国际比较,仍应标准化死产定义,并制定一份胎儿和婴儿死亡原因的简短清单。