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在线支持小组为转移性乳腺癌女性:一项可行性试点研究。

Online support groups for women with metastatic breast cancer: a feasibility pilot study.

机构信息

Psychology Department, Felician College, Lodi, NJ 07644, USA.

出版信息

J Psychosoc Oncol. 2010;28(5):560-86. doi: 10.1080/07347332.2010.504504.

Abstract

This study evaluates the feasibility and acceptability of an online peer support group intervention for women with metastatic breast cancer (MBC). Feasibility, participation rates, participant satisfaction, and preliminary outcomes are examined from a 1999 to 2000 study of online peer support groups for women with MBC. Thirty women with MBC were randomly assigned to either an immediate online support condition or a waitlisted control condition. For practical and ethical reasons, the waitlist period was limited to 2 months. Six monthly assessments were collected using standardized measurement instruments. Intervention retention rates (73%), assessment completion rates (range = 100%-86% in retained participants) and support group participation (M = 5.9 days per week) were high compared to other published studies on this population. Reported satisfaction with the intervention was also high. An online support intervention study is feasible using a waitlist control. Despite the feasibility and acceptability of the study procedures, the study design and small sample size precluded definitive conclusions about intervention effectiveness. As such, study procedures should be replicated with a larger more representative sample to examine the effectiveness of the intervention.

摘要

本研究评估了针对转移性乳腺癌 (MBC) 女性的在线同伴支持小组干预措施的可行性和可接受性。从 1999 年至 2000 年对 MBC 女性在线同伴支持小组的研究中,考察了可行性、参与率、参与者满意度和初步结果。将 30 名患有 MBC 的女性随机分配到即时在线支持组或候补对照组。出于实际和伦理原因,候补期限制为 2 个月。使用标准化测量工具收集了六次每月评估。与针对该人群的其他已发表研究相比,干预保留率(73%)、评估完成率(保留参与者的范围为 100%-86%)和支持小组参与率(每周 5.9 天)较高。对干预措施的满意度报告也很高。使用候补对照进行在线支持干预研究是可行的。尽管研究程序具有可行性和可接受性,但研究设计和小样本量排除了对干预效果的明确结论。因此,应使用更大、更具代表性的样本复制研究程序,以检验干预措施的有效性。

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