Falisi Angela L, Wiseman Kara P, Gaysynsky Anna, Scheideler Jennifer K, Ramin Daniel A, Chou Wen-Ying Sylvia
Division of Cancer Control and Population Sciences, National Cancer Institute, 9609 Medical Center Drive, Rockville, MD, 20850, USA.
ICF International, Rockville, MD, USA.
J Cancer Surviv. 2017 Dec;11(6):808-821. doi: 10.1007/s11764-017-0620-5. Epub 2017 Jun 10.
Social media may offer support to individuals who are navigating the complex and challenging experience of cancer. A growing body of literature has been published over the last decade exploring the ways cancer survivors utilize social media. This study aims to provide a systematic synthesis of the current literature in order to inform cancer health communication practice and cancer survivorship research.
Using PRISMA guidelines, four electronic databases were searched to retrieve publications on breast cancer and social media published between 2005 and 2015. The final sample included 98 publications (13 commentaries and reviews, 47 descriptive studies, and 38 intervention studies). Intervention studies were assessed for key features and outcome measures. Studies utilizing content analysis were further evaluated qualitatively.
Online support groups were the most commonly studied platform, followed by interactive message boards and web forums. Limited research focuses on non-Caucasian populations. Psychosocial well-being was the most commonly measured outcome of interest. While social media engagement was assessed, few standardized measures were identified. Content analyses of social media interactions were prevalent, though few articles linked content to health outcomes.
The current literature highlights the impact and potential utility of social media for breast cancer survivors. Future studies should consider connecting social media engagement and content to psychosocial, behavioral, and physical health outcomes.
Online groups and communities may improve the well-being of breast cancer survivors by providing opportunities to engage with wider social networks, connect with others navigating similar cancer experiences, and obtain cancer-related information. Researchers should consider the potential role of social media in addressing the unmet needs of breast cancer survivors, and particularly the implications for clinical and public health practice.
社交媒体可能为正在经历复杂且具有挑战性的癌症体验的个人提供支持。在过去十年中，已有越来越多的文献发表，探讨癌症幸存者使用社交媒体的方式。本研究旨在对当前文献进行系统整合，以为癌症健康传播实践和癌症幸存者研究提供参考。
按照PRISMA指南，检索了四个电子数据库，以获取2005年至2015年间发表的关于乳腺癌与社交媒体的出版物。最终样本包括98篇出版物（13篇评论和综述、47篇描述性研究以及38篇干预性研究）。对干预性研究的关键特征和结果指标进行了评估。对采用内容分析法的研究进一步进行了定性评估。
在线支持小组是研究最为普遍的平台，其次是交互式留言板和网络论坛。针对非白人群体的研究有限。心理社会幸福感是最常测量的感兴趣结果。虽然评估了社交媒体参与度，但几乎未发现标准化测量方法。社交媒体互动的内容分析很普遍，不过很少有文章将内容与健康结果联系起来。
当前文献突出了社交媒体对乳腺癌幸存者的影响和潜在效用。未来的研究应考虑将社交媒体参与度和内容与心理社会、行为及身体健康结果联系起来。
在线群组和社区可能通过提供与更广泛社交网络互动、与经历类似癌症的其他人建立联系以及获取癌症相关信息的机会，来改善乳腺癌幸存者的幸福感。研究人员应考虑社交媒体在满足乳腺癌幸存者未满足需求方面的潜在作用，尤其是对临床和公共卫生实践的影响。
