Johnson Hilary, Douglas Jacinta, Bigby Christine, Iacono Teresa
Communication Resource Centre, Scope, and La Trobe University, Victoria.
J Intellect Dev Disabil. 2010 Sep;35(3):175-86. doi: 10.3109/13668250.2010.501026.
People with severe intellectual disability have limited communication skills, small social networks, and may experience isolation. Little is known about how interactions occur with social network members and the role of social support.
An adult with a severe intellectual disability was observed in her daily environments. Her social network members were identified and interviewed. Data were analysed using a grounded theory approach.
Fourteen social network members were identified. People with severe intellectual disability interact in different ways, which may not be understood by network members or conform to normative expectations. Still, network members experienced enjoyment, personal satisfaction, and love in their interactions.
Social interactions with people with severe intellectual disability are challenging. The results point to the benefits of a focus on learning that makes interactions meaningful for each individual, sharing that information with network members, and considering ways to increase interactions and extend the social network.
重度智力残疾者沟通能力有限，社交网络较小，可能会感到孤立。对于他们与社交网络成员的互动方式以及社会支持的作用，我们知之甚少。
对一名重度智力残疾的成年人在其日常环境中进行观察。确定并采访了她的社交网络成员。采用扎根理论方法对数据进行分析。
确定了14名社交网络成员。重度智力残疾者以不同方式进行互动，这些方式可能不为网络成员所理解，也不符合规范预期。尽管如此，网络成员在互动中体验到了乐趣、个人满足感和爱意。
与重度智力残疾者的社交互动具有挑战性。研究结果表明，专注于学习以使互动对每个个体都有意义、与网络成员分享该信息以及考虑增加互动和扩展社交网络的方法具有益处。
