Paediatric Rheumatology Division, Centre for Child health, Sir Ganga Ram Hospital, New Delhi, India 110022.
Indian J Pediatr. 2010 Sep;77(9):993-6. doi: 10.1007/s12098-010-0134-x. Epub 2010 Sep 3.
Rheumatology is a relatively new specialty in the field of Pediatrics in India where there are only a few centres of excellence. Awareness about these conditions in childhood is lacking and patients are often referred late resulting in poor long term outcomes. This article highlights the needs of the paediatric rheumatology patients which are complex and should encompass both acute and chronic care and also plan a smooth transition to the adult rheumatology world. In the year 2010, attaining remission is the goal for every child with a rheumatologic disorder, which is seldom achieved for the Indian pediatric rheumatologic patient. The article discusses the reasons for poor awareness, the current outcome for these patients and details the burden of disease in India. The health care delivery system and finally the way forward have been discussed.
风湿病学在印度儿科学领域是一个相对较新的专业,只有少数几个卓越中心。人们对儿童时期这些疾病的认识不足,患者往往就诊较晚,导致长期预后不佳。本文强调了儿科风湿病患者的需求,这些需求是复杂的,应该既包括急性和慢性护理,也应该计划顺利过渡到成人风湿病领域。在 2010 年,对于每一个患有风湿病的孩子来说,达到缓解是目标,但对于印度儿科风湿病患者来说,这很少能实现。本文讨论了认识不足的原因、这些患者的现状以及印度疾病负担的细节。最后还讨论了医疗保健提供系统和前进的方向。