Rigby Patricia, Ryan Stephen E, Campbell Kent A
Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Ontario, Canada.
Disabil Rehabil Assist Technol. 2011;6(3):260-7. doi: 10.3109/17483107.2010.522678. Epub 2010 Oct 1.
To compare the satisfaction with quality of life (QOL) of adults with tetraplegia from spinal cord injury (SCI) who use and do not use electronic aids to daily living (EADLs).
This study used a cross-sectional design. Thirty-six persons with spinal cord injuries or conditions at or above C5/6 level participated. Fifteen participants used EADL at home and 21 formed the comparison group of non-users of EADL; all were living in the community. We used the Quality of Life Profile-Physical Disabilities (QOLP-PD) to examine participant's QOL.
Both groups rated the levels of importance of all aspects of QOL equally. The EADL users rated their satisfaction with QOL significantly higher for total QOLP-PD scores and for four of the nine domains, including all three domains of belonging. The groups did not differ in age, FIM scores, level of education, and hours of paid attendant care. The EADL user group had significantly more males than females, and had higher levels of SCI.
EADLs appear to contribute to the experience of greater subjective QOL for persons with severe physical disability from high SCI. Prospective cohort studies designs that employ methods and analytic plans to study the causal effect of EADLs on QOL are recommended. The QOLP-PD was found to be a valid measure of QOL for this population.
比较使用和不使用日常生活电子辅助器具(EADL)的脊髓损伤(SCI)所致四肢瘫痪成年人对生活质量(QOL)的满意度。
本研究采用横断面设计。36名C5/6及以上水平脊髓损伤或患有相关疾病的患者参与研究。15名参与者在家中使用EADL,21名组成不使用EADL的对照组;所有参与者均生活在社区。我们使用生活质量概况-身体残疾版(QOLP-PD)来评估参与者的生活质量。
两组对生活质量各方面重要性的评分相同。EADL使用者对QOLP-PD总分及九个领域中的四个领域(包括归属感的所有三个领域)的生活质量满意度评分显著更高。两组在年龄、FIM评分、教育程度和付费护理时长方面无差异。EADL使用者组男性明显多于女性,脊髓损伤水平更高。
EADL似乎有助于严重高位SCI身体残疾者获得更高的主观生活质量。建议采用前瞻性队列研究设计,运用相关方法和分析计划来研究EADL对生活质量的因果效应。发现QOLP-PD是该人群生活质量的有效测量工具。