国家脊柱裂计划过渡倡议：人员、计划和过程。

The National Spina Bifida Program transition initiative: the people, the plan, and the process.

机构信息

Division of Human Development and Disability, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30333, USA.

出版信息

Pediatr Clin North Am. 2010 Aug;57(4):903-10. doi: 10.1016/j.pcl.2010.07.010.

DOI:10.1016/j.pcl.2010.07.010

PMID:20883880

Abstract

This article outlines and summarizes the rationale and the working process that was undertaken by the National Spina Bifida Program to address the issues of transitioning throughout the life course for persons growing up with spina bifida. Their challenges include achieving independent living, vocational independence, community mobility, and participation in social activities, and health management. The creation, the underlying concepts, and the dissemination of the Life Course Model are described.

摘要

本文概述并总结了国家脊柱裂项目在解决脊柱裂患者整个生命周期过渡问题方面所采取的理由和工作流程。他们面临的挑战包括实现独立生活、职业独立、社区流动性和参与社会活动以及健康管理。描述了生命周期模型的创建、基本概念和传播。