Department of Urology, QEII Health Science Centre, Halifax, Nova Scotia, Canada.
J Urol. 2011 Oct;186(4 Suppl):1590-4. doi: 10.1016/j.juro.2011.04.011. Epub 2011 Aug 19.
Transitioning care of patients with spina bifida to adult centers poses a challenge. We sought patient and parent perspectives on the transition process at our center and correlated these perspectives with medical outcomes.
Patients who attended the adult spina bifida clinic at our institution were invited to complete SF-36®, the Ambulatory Care Experience Survey and a Transition of Care Survey. Urological and neurosurgical medical outcomes were correlated with health status, clinic experience and perspectives on the transition process. Statistical analysis was done using SPSS®, version 16.0.
Of 105 patients with spina bifida 24 participated in the study. SF-36 results showed that the physical health domain correlated with lack of employment (p = 0.006). Patients whose parents completed the surveys on their behalf were more likely to have physical limitations than the patients who completed surveys (p = 0.011). Urological and neurosurgical outcomes did not significantly affect SF-36, Ambulatory Care Experience Survey or Transition of Care Survey scores in this patient population. Patients and caregivers identified similar key elements and barriers in the transition process. Satisfaction with care at the pediatric center was higher than at the adult center.
Transitioning care of patients with spina bifida from pediatric to adult care poses challenges for the health care system. Medical outcomes do not impact the patient perspective of the transition process. To optimize the transition of care we must address the barriers identified by patients and their caregivers.
将脊柱裂患者的护理过渡到成人中心是一项挑战。我们旨在了解患者和家长对我们中心过渡过程的看法，并将这些看法与医疗结果相关联。
邀请在我院成人脊柱裂诊所就诊的患者完成 SF-36®、门诊护理体验调查和过渡护理调查。将泌尿科和神经外科的医疗结果与健康状况、临床经验和对过渡过程的看法相关联。使用 SPSS®，版本 16.0 进行统计分析。
在 105 名脊柱裂患者中，有 24 名参与了研究。SF-36 结果表明，身体健康领域与失业相关（p = 0.006）。代表父母完成调查的患者比自己完成调查的患者更容易出现身体限制（p = 0.011）。在该患者群体中，泌尿科和神经外科的结果并未显著影响 SF-36、门诊护理体验调查或过渡护理调查的评分。患者和护理人员在过渡过程中确定了类似的关键要素和障碍。对儿科中心的护理满意度高于成人中心。
将脊柱裂患者的护理从儿科过渡到成人护理给医疗保健系统带来挑战。医疗结果并不会影响患者对过渡过程的看法。为了优化护理过渡，我们必须解决患者及其护理人员确定的障碍。
