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[精神障碍中的照护后果——定义与评估工具]

[Caregiving consequences in mental disorders--definitions and instruments of assessment].

作者信息

Ciałkowska-Kuźmińska Magdalena, Kiejna Andrzej

机构信息

Katedra i Klinika Psychiatrii AM we Wrocławiu.

出版信息

Psychiatr Pol. 2010 Jul-Aug;44(4):519-27.

Abstract

Severe mental illnesses have far-reaching consequences for both patients and their relatives. This paper reviews literature on the measures of caregiving consequences. Authors provide a condensed knowledge and research results in the area of caregiving consequences, especially both subjective and objective caregivers' burden. The consequences of care apply to carers' social and leisure activities, financial status, health condition. The burden of care has three fundamental causes: the reorganisation of mental health services, a social isolation of patients and their families and the lack of systemic support for caregivers. The problem of caregiving consequences has been investigated in several studies. In order to identify factors, which have impact on caregiver distress, a variety instruments have been developed. This paper focuses on questionnaires useful for the systematic assessment of both objective and subjective burden: Involvement Evaluation Questionnaire (IEQ), Perceived Family Burden Scale (PFBS), Zarit Caregiver Burden Scale (ZCBS), Experience of Caregiving Inventory (ECI), Family Problems Questionnaire (FPQ). The mentioned instruments proved to be a reliable instrument for measuring caregiver consequences in mental healthcare.

摘要

严重精神疾病对患者及其亲属都有着深远的影响。本文回顾了关于照顾后果衡量方法的文献。作者总结了照顾后果领域的知识和研究成果,特别是主观和客观的照顾者负担。照顾的后果涉及照顾者的社会和休闲活动、经济状况以及健康状况。照顾负担有三个根本原因:精神卫生服务的重组、患者及其家庭的社会隔离以及对照顾者缺乏系统性支持。多项研究对照顾后果问题进行了调查。为了确定对照顾者痛苦有影响的因素,已经开发了多种工具。本文重点关注有助于系统评估客观和主观负担的问卷:参与度评估问卷(IEQ)、感知家庭负担量表(PFBS)、扎里特照顾者负担量表(ZCBS)、照顾经历量表(ECI)、家庭问题问卷(FPQ)。上述工具被证明是衡量精神卫生保健中照顾者后果的可靠工具。

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