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残疾或有特殊医疗需求的青年的医疗保健过渡:一种生态方法。

Health care transitions among youth with disabilities or special health care needs: an ecological approach.

机构信息

Institute for Public Health Genetics, School of Public Health, University of Washington, Seattle, WA, USA.

出版信息

J Pediatr Nurs. 2010 Dec;25(6):505-50. doi: 10.1016/j.pedn.2009.07.003. Epub 2009 Aug 22.

DOI:10.1016/j.pedn.2009.07.003
PMID:21035018
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2994364/
Abstract

This literature review of 46 articles uses the ecological model as a framework for organizing concepts and themes related to health care transition among youth with disabilities or special health care needs (SHCN). Transition involves interactions in immediate and distal environmental systems. Important interactions in immediate environments include those with family members, health care providers, and peers. Activities in distal systems include policies at the governmental and health system levels. The ecological model can help researchers and practitioners to design experimental interventions in multiple settings that ensure smooth transitions and support the well-being of youth with disabilities or SHCN.

摘要

这篇综述文章共 46 篇文献,以生态模型为框架,组织了与残疾或有特殊医疗需求的青年(SHCN)的医疗转衔相关的概念和主题。转衔涉及到直接和间接环境系统的相互作用。直接环境中的重要相互作用包括与家庭成员、医疗保健提供者和同龄人之间的相互作用。在远程系统中的活动包括政府和卫生系统层面的政策。生态模型可以帮助研究人员和从业者在多个环境中设计实验性干预措施,以确保顺利转衔并支持残疾或 SHCN 青年的福祉。

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本文引用的文献

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Risk of losing insurance during the transition into adulthood among insured youth with disabilities.成年过渡期内参保残疾青年失去保险的风险。
Matern Child Health J. 2010 Jan;14(1):67-74. doi: 10.1007/s10995-009-0470-5.
2
Transition to adult care: experiences and expectations of adolescents with a chronic illness.向成人医疗的过渡:慢性病青少年的经历与期望
Child Care Health Dev. 2008 Sep;34(5):557-63. doi: 10.1111/j.1365-2214.2008.00844.x.
3
Comfort of general internists and general pediatricians in providing care for young adults with chronic illnesses of childhood.普通内科医生和普通儿科医生为患有儿童慢性疾病的年轻人提供护理时的舒适度。
J Gen Intern Med. 2008 Oct;23(10):1621-7. doi: 10.1007/s11606-008-0716-8. Epub 2008 Jul 26.
4
Attitudes antecedent to transition to self-management of a chronic genetic disorder.向慢性遗传性疾病自我管理转变之前的态度。
Clin Genet. 2008 Oct;74(4):325-37. doi: 10.1111/j.1399-0004.2008.01052.x. Epub 2008 Jul 9.
5
Improving transition from pediatric to adult cystic fibrosis care: lessons from a national survey of current practices.改善从儿科到成人囊性纤维化护理的过渡:当前实践全国调查的经验教训。
Pediatrics. 2008 May;121(5):e1160-6. doi: 10.1542/peds.2007-2217.
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Adolescents' transition to self-management of a chronic genetic disorder.青少年向慢性遗传性疾病自我管理的过渡。
Qual Health Res. 2008 Apr;18(4):441-57. doi: 10.1177/1049732308314853.
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Survey of primary care pediatricians on the transition and transfer of adolescents to adult health care.针对青少年向成人医疗保健过渡与转诊情况对基层医疗儿科医生进行的调查。
Clin Pediatr (Phila). 2008 May;47(4):347-54. doi: 10.1177/0009922807310938. Epub 2008 Jan 7.
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Transition from a pediatric HIV intramural clinical research program to adolescent and adult community-based care services:assessing transition readiness.从儿科艾滋病毒机构内临床研究项目向基于社区的青少年和成人护理服务过渡:评估过渡准备情况。
Soc Work Health Care. 2007;46(1):1-19. doi: 10.1300/J010v46n02_01.
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State and national estimates of insurance coverage and health care utilization for adolescents with chronic conditions from the National Survey of Children's Health, 2003.根据2003年全国儿童健康调查得出的关于患有慢性病青少年的保险覆盖范围和医疗保健利用情况的州及全国估计数据。
J Adolesc Health. 2007 Oct;41(4):343-9. doi: 10.1016/j.jadohealth.2007.04.008. Epub 2007 Jul 12.
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The clinical, psychosocial, and socioeconomic concerns of urban youth living with diabetes.患有糖尿病的城市青少年的临床、心理社会和社会经济问题。
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