残疾或有特殊医疗需求的青年的医疗保健过渡：一种生态方法。
Health care transitions among youth with disabilities or special health care needs: an ecological approach.
机构信息
Institute for Public Health Genetics, School of Public Health, University of Washington, Seattle, WA, USA.
出版信息
J Pediatr Nurs. 2010 Dec;25(6):505-50. doi: 10.1016/j.pedn.2009.07.003. Epub 2009 Aug 22.
Abstract
This literature review of 46 articles uses the ecological model as a framework for organizing concepts and themes related to health care transition among youth with disabilities or special health care needs (SHCN). Transition involves interactions in immediate and distal environmental systems. Important interactions in immediate environments include those with family members, health care providers, and peers. Activities in distal systems include policies at the governmental and health system levels. The ecological model can help researchers and practitioners to design experimental interventions in multiple settings that ensure smooth transitions and support the well-being of youth with disabilities or SHCN.
摘要
这篇综述文章共 46 篇文献，以生态模型为框架，组织了与残疾或有特殊医疗需求的青年（SHCN）的医疗转衔相关的概念和主题。转衔涉及到直接和间接环境系统的相互作用。直接环境中的重要相互作用包括与家庭成员、医疗保健提供者和同龄人之间的相互作用。在远程系统中的活动包括政府和卫生系统层面的政策。生态模型可以帮助研究人员和从业者在多个环境中设计实验性干预措施，以确保顺利转衔并支持残疾或 SHCN 青年的福祉。
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Matern Child Health J. 2010 Jan;14(1):67-74. doi: 10.1007/s10995-009-0470-5.
2
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Child Care Health Dev. 2008 Sep;34(5):557-63. doi: 10.1111/j.1365-2214.2008.00844.x.
3
Comfort of general internists and general pediatricians in providing care for young adults with chronic illnesses of childhood.普通内科医生和普通儿科医生为患有儿童慢性疾病的年轻人提供护理时的舒适度。
J Gen Intern Med. 2008 Oct;23(10):1621-7. doi: 10.1007/s11606-008-0716-8. Epub 2008 Jul 26.
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Attitudes antecedent to transition to self-management of a chronic genetic disorder.向慢性遗传性疾病自我管理转变之前的态度。
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Qual Health Res. 2008 Apr;18(4):441-57. doi: 10.1177/1049732308314853.
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J Adolesc Health. 2007 Oct;41(4):343-9. doi: 10.1016/j.jadohealth.2007.04.008. Epub 2007 Jul 12.
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