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争议性环境疾病的合法性之争:多化学敏感症(MCS)案例研究。

Debating the legitimacy of a contested environmental illness: a case study of multiple chemical sensitivities (MCS).

机构信息

School of Social and Cultural Studies, University of Western Australia, Australia.

出版信息

Sociol Health Illn. 2010 Nov;32(7):1026-40. doi: 10.1111/j.1467-9566.2010.01255.x. Epub 2010 Oct 11.

DOI:10.1111/j.1467-9566.2010.01255.x
PMID:21039616
Abstract

More than 20years after it was first identified, the anomalous condition, multiple chemical sensitivities (MCS), remains immersed in controversy, with a continuing debate over its causation being played out in the medico-scientific community and in the courts. This article examines why sceptical and supportive experts disagree over the condition's legitimacy as an organic condition. Drawing on ethnographic research conducted in Perth, Western Australia, the author scrutinises the decision-making practices of 16 experts (eight sceptical and eight supportive of a chemical explanation). Both groups were found to use evidence-based, inductive reasoning. However, sceptical experts tended to use a different set of evidence requirements, exhibited more faith in the efficiency of the current biomedical paradigm regarding toxicity and were less likely to acknowledge uncertainty in their field. All the experts recognised a spectrum of beliefs about the causal mechanisms of MCS. However, when they were engaged in litigation as expert witnesses due to their supportive or sceptical tendency, the oppositional legal system polarised their opinions and exacerbated the perceived divide between them. Ultimately, the adversarial medico-legal process inhibits genuine dialogue between some of the key players in the MCS debate, thus impeding understanding and consensus about the condition.

摘要

在首次被确认 20 多年后,多种化学敏感性(MCS)这种异常状况仍然存在争议,医学科学界和法庭上持续争论其病因。本文探讨了为什么怀疑论者和支持者专家对该病症是否为有机病症存在分歧。本文作者通过在西澳大利亚州珀斯进行的民族志研究,仔细审查了 16 名专家(8 名怀疑论者和 8 名支持化学解释者)的决策实践。这两组专家都发现使用了基于证据的归纳推理。然而,怀疑论者专家往往使用不同的证据要求,对当前生物医学毒性范式的效率更有信心,并且不太可能承认其领域的不确定性。所有专家都认识到 MCS 的因果机制存在一系列信念。然而,当他们因支持或怀疑的倾向而作为专家证人参与诉讼时,对立的法律制度使他们的观点两极化,并加剧了他们之间的分歧。最终,对抗性的医学法律程序抑制了 MCS 辩论中的一些关键参与者之间的真正对话,从而阻碍了对该病症的理解和共识。

相似文献

1
Debating the legitimacy of a contested environmental illness: a case study of multiple chemical sensitivities (MCS).争议性环境疾病的合法性之争:多化学敏感症(MCS)案例研究。
Sociol Health Illn. 2010 Nov;32(7):1026-40. doi: 10.1111/j.1467-9566.2010.01255.x. Epub 2010 Oct 11.
2
Negotiating the diagnostic uncertainty of contested illnesses: physician practices and paradigms.应对疑难病症诊断的不确定性:医生的做法与范式
Health (London). 2008 Oct;12(4):453-78. doi: 10.1177/1363459308094420.
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"I never wanted to be a quack!" The professional deviance of plaintiff experts in contested illness lawsuits: the case of multiple chemical sensitivities.“我从来不想成为庸医!”在有争议的疾病诉讼中,原告专家的职业偏差:多发性化学敏感症案例。
Med Anthropol Q. 2010 Jun;24(2):182-98. doi: 10.1111/j.1548-1387.2010.01096.x.
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The credible forensic psychiatric evaluation in multiple chemical sensitivity litigation.多重化学物质敏感诉讼中的可靠法医精神病学评估。
J Am Acad Psychiatry Law. 1998;26(3):361-74.
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Repressive authenticity in the quest for legitimacy: surveillance and the contested illness lawsuit.追求合法性中的压抑真实性:监控与有争议的疾病诉讼。
Soc Sci Med. 2012 Nov;75(10):1762-8. doi: 10.1016/j.socscimed.2012.07.026. Epub 2012 Aug 5.
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Multiple chemical sensitivity syndrome: a clinical perspective. I. Case definition, theories of pathogenesis, and research needs.多重化学物质敏感综合征:临床视角。I. 病例定义、发病机制理论及研究需求。
J Occup Med. 1994 Jul;36(7):718-30.
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Clinical consequences of the EI/MCS "diagnosis": two paths.“极轻微意识状态/最小意识状态”诊断的临床后果:两条途径。
Regul Toxicol Pharmacol. 1996 Aug;24(1 Pt 2):S96-110. doi: 10.1006/rtph.1996.0084.
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[Multiple chemical sensitivity (MCS) -- a case series].[多重化学敏感性(MCS)——病例系列]
Dtsch Med Wochenschr. 2005 Feb 18;130(7):329-32. doi: 10.1055/s-2005-863051.
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Multiple chemical sensitivities syndrome: a review.多重化学敏感性综合征:综述
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[Multiple chemical sensitivity: a new type of toxicity?].[多重化学敏感性:一种新型毒性?]
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