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乳糜泻在工作中的挑战:对包容性政治的一种抗争。

The challenges of coeliac disease at work: A contestation of the politics of inclusion.

作者信息

Steinhoff Anne, Warren Rebecca, Carter David, Glynos Jason

机构信息

Essex Business School, University of Essex, Colchester, UK.

Canberra Business School, University of Canberra, Canberra, Australian Capital Territory, Australia.

出版信息

Sociol Health Illn. 2025 Jan;47(1):e13826. doi: 10.1111/1467-9566.13826. Epub 2024 Jul 29.

DOI:10.1111/1467-9566.13826
PMID:39073374
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11684492/
Abstract

By focusing on the experiences of employees living with coeliac disease as evidenced in UK employment tribunal cases, this paper interrogates the way practices of exclusion are performed in legal and organisational contexts that purport to promote values of inclusion. In paying attention to how differences are constructed and negotiated, the paper unpacks the way organisational practices mobilise an array of workplace mechanisms to produce complex dynamics of exclusion. Applying Laclau and Mouffe's logics of equivalence and difference, we show how questionable impulses and practices emerge in a workplace environment characterised by unclarity and vagueness. One impulse, for example, involves privatising and individualising the condition of employees with coeliac disease, giving rise to patronising and stigmatising attitudes that can turn them into victims. However, we also identify workplace mechanisms countering these tendencies, which can underpin forms of collective support in the struggle for recognition. Our study thus contributes to the body of sociological literature that pays attention to health-related workplace injustices by challenging the purported promotion of health-based inclusion through a focus on tribunal cases, leading to suggestions for further research into the way medical conditions are theorised and 'lived' at work.

摘要

通过关注英国就业法庭案件中患有乳糜泻的员工的经历,本文审视了在旨在促进包容价值观的法律和组织背景下,排斥行为是如何实施的。在关注差异是如何构建和协商的过程中,本文剖析了组织实践如何调动一系列工作场所机制,以产生复杂的排斥动态。运用拉克劳和莫菲的等同逻辑与差异逻辑,我们展示了在一个以不清晰和模糊为特征的工作场所环境中,可疑的冲动和行为是如何出现的。例如,一种冲动涉及将患有乳糜泻的员工的病情私有化和个体化,从而产生居高临下和污名化的态度,可能使他们成为受害者。然而,我们也发现了对抗这些倾向的工作场所机制,这些机制可以为争取认可的斗争中的集体支持形式提供基础。因此,我们的研究通过关注法庭案件来挑战所谓的基于健康的包容促进,从而为关注与健康相关的工作场所不公正现象的社会学文献做出了贡献,进而为进一步研究医疗状况在工作中如何被理论化和“体验”提出了建议。

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本文引用的文献

1
Working it out: Will the improved management of leaky bodies in the workplace create a dialogue between medical sociology and disability studies?努力解决问题:工作场所中漏体的管理改善是否会在医学社会学和残疾研究之间创造对话?
Sociol Health Illn. 2023 Jul;45(6):1276-1299. doi: 10.1111/1467-9566.13519. Epub 2022 Sep 5.
2
Work Loss in Patients With Celiac Disease: A Population-based Longitudinal Study.乳糜泻患者的工作损失:一项基于人群的纵向研究。
Clin Gastroenterol Hepatol. 2022 May;20(5):1068-1076.e6. doi: 10.1016/j.cgh.2021.09.002. Epub 2021 Sep 9.
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Populism and health policy: three international case studies of right-wing populist policy frames.
民粹主义与健康政策:右翼民粹主义政策框架的三个国际案例研究。
Sociol Health Illn. 2020 Nov;42(8):1967-1981. doi: 10.1111/1467-9566.13173. Epub 2020 Aug 11.
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Quality of life in coeliac disease: qualitative interviews to develop candidate items for the Coeliac Disease Assessment Questionnaire.乳糜泻患者的生活质量:开展定性访谈以制定乳糜泻评估问卷的候选条目
Patient Relat Outcome Meas. 2018 Jul 4;9:211-220. doi: 10.2147/PROM.S149238. eCollection 2018.
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Reproducing politics: the politicisation of patients' identities and assisted reproduction in Poland and Sweden.
Sociol Health Illn. 2016 Sep;38(7):1074-91. doi: 10.1111/1467-9566.12433. Epub 2016 Jun 6.
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Living with coeliac disease: a grounded theory study.乳糜泻患者的生活:扎根理论研究。
J Hum Nutr Diet. 2014 Feb;27(1):30-40. doi: 10.1111/jhn.12062. Epub 2013 Mar 21.
7
If you can't eat what you like, like what you can: how children with coeliac disease and their families construct dietary restrictions as a matter of choice.如果你不能想吃什么就吃什么,那就喜欢吃你能吃的:乳糜泻患儿及其家庭如何将饮食限制视为一种选择。
Sociol Health Illn. 2013 May;35(4):592-609. doi: 10.1111/j.1467-9566.2012.01519.x. Epub 2012 Oct 12.
8
Debating the legitimacy of a contested environmental illness: a case study of multiple chemical sensitivities (MCS).争议性环境疾病的合法性之争:多化学敏感症(MCS)案例研究。
Sociol Health Illn. 2010 Nov;32(7):1026-40. doi: 10.1111/j.1467-9566.2010.01255.x. Epub 2010 Oct 11.
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The moral regulation of the workplace: presenteeism and public health.工作场所的道德规范:出勤主义与公共健康。
Sociol Health Illn. 2009 Nov;31(7):994-1010. doi: 10.1111/j.1467-9566.2009.01169.x. Epub 2009 Jun 8.
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Living with chronic illness in the family setting.
Sociol Health Illn. 2005 Apr;27(3):372-92. doi: 10.1111/j.1467-9566.2005.00447.x.