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Aten Primaria. 2010 Sep;42 Suppl 1(Suppl 1):41-7. doi: 10.1016/S0212-6567(10)70007-X.
2
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[Autonomy of the patient with chronic diseases: from passive patient to active patient].[慢性病患者的自主性:从被动患者到主动患者]
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The Engaged Patient: The Relevance of Patient-Physician Communication for Twenty-First-Century Health.参与式患者:医患沟通对 21 世纪健康的相关性。
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Patients' Experiences of Diabetes Self-Management Education According to Health-Literacy Levels.不同健康素养水平患者的糖尿病自我管理教育体验
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Mediating Effects of Health Literacy, Self-Efficacy, and Social Support on the Relationship Between Disease Knowledge and Patient Participation Behavior Among Chronic Ill Patients: A Cross-Sectional Study Based on the Capability-Opportunity-Motivation and Behavior (COM-B) Model.健康素养、自我效能感和社会支持在慢性病患者疾病知识与患者参与行为关系中的中介作用:一项基于能力-机会-动机与行为(COM-B)模型的横断面研究
Patient Prefer Adherence. 2025 May 8;19:1337-1350. doi: 10.2147/PPA.S513375. eCollection 2025.
2
Effectiveness of technology-based interventions in detection, prevention, monitoring and treatment of patients at risk or diagnosed with mild cognitive impairment: protocol for a systematic review.基于技术的干预措施在检测、预防、监测和治疗有风险或轻度认知障碍诊断的患者方面的有效性:系统评价方案。
BMJ Open. 2021 Aug 18;11(8):e045978. doi: 10.1136/bmjopen-2020-045978.

本文引用的文献

1
New evidence demonstrates that self-monitoring of blood glucose does not improve outcomes in type 2 diabetes-when this practice is not applied properly.新证据表明,当血糖自我监测方法使用不当时,其并不能改善2型糖尿病的病情转归。
J Diabetes Sci Technol. 2008 May;2(3):342-8. doi: 10.1177/193229680800200302.
2
Paternalism, participation and partnership - the evolution of patient centeredness in the consultation.家长式作风、参与和伙伴关系——诊疗中以患者为中心的演变
Patient Educ Couns. 2009 Feb;74(2):150-5. doi: 10.1016/j.pec.2008.08.017. Epub 2008 Oct 18.
3
Shared decision making: have we missed the obvious?共同决策:我们是否忽略了显而易见的东西?
Arch Intern Med. 2008 Jul 14;168(13):1368-70. doi: 10.1001/archinte.168.13.1368.
4
Shared decision making in the medical encounter: are we all talking about the same thing?医疗问诊中的共同决策:我们讨论的是同一件事吗?
Med Decis Making. 2007 Sep-Oct;27(5):539-46. doi: 10.1177/0272989X07306779. Epub 2007 Sep 14.
5
Effectiveness of strategies for informing, educating, and involving patients.告知、教育患者并让患者参与其中的策略的有效性。
BMJ. 2007 Jul 7;335(7609):24-7. doi: 10.1136/bmj.39246.581169.80.
6
[Involvement of the patient: the new role of patients in the health system].[患者的参与:患者在医疗体系中的新角色]
Aten Primaria. 2006 Sep;38(4):234-7. doi: 10.1157/13092347.
7
A shared treatment decision-making approach between patients with chronic conditions and their clinicians: the case of diabetes.慢性病患者与其临床医生之间的共同治疗决策方法:以糖尿病为例。
Health Expect. 2006 Mar;9(1):25-36. doi: 10.1111/j.1369-7625.2006.00359.x.
8
Motivational interviewing: a systematic review and meta-analysis.动机性访谈:一项系统评价与荟萃分析
Br J Gen Pract. 2005 Apr;55(513):305-12.
9
Implementing an empowerment-based diabetes self-management education program.实施一项基于赋权的糖尿病自我管理教育项目。
Diabetes Educ. 2005 Jan-Feb;31(1):53, 55-6, 61. doi: 10.1177/0145721704273166.
10
"Expert patient"--dream or nightmare?“专家型患者”——美梦还是噩梦?
BMJ. 2004 Mar 27;328(7442):723-4. doi: 10.1136/bmj.328.7442.723.

[患者参与疾病自我管理的重要性:专家患者。支持患者自主性的新技术的作用]

[Importance of patient involvement in disease self-management: the expert patient. Role of new technologies to support patient autonomy].

作者信息

Millaruelo Trillo José Manuel

机构信息

Centro de Salud Torrero Este, Zaragoza, España.

出版信息

Aten Primaria. 2010 Sep;42 Suppl 1(Suppl 1):41-7. doi: 10.1016/S0212-6567(10)70007-X.

DOI:10.1016/S0212-6567(10)70007-X
PMID:21074075
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8171394/
Abstract

Because of population aging in our geographical and social setting and progress in preventing premature death, there is an ever-increasing prevalence of chronic diseases, in this case diabetes. In our environment, the dietary changes and sedentariness that have led to the spectacular rise in obesity have increased the prevalence of diabetes. Our health system is reasonably well prepared to manage acute disease but neither health professionals nor referral circuits -nor probably patients- are prepared for the new scenario. Consequently, we should prepare ourselves for the management of chronic disease, encourage patient participation in decision-making and promote a new, less paternalistic, paradigm of the doctor-patient relationship. The experiences initiated by the University of Stanford, or in Spain by the National Patients' Forum, could serve as models. In the next few years, the figure of the expert patient will undoubtedly be highly useful. In general, physicians and patients place a great deal of faith in the contribution of new treatments and technologies to the relief or management of disease. To deny this in the XXI century would be ridiculous, but all the possibilities of these treatments and technologies only show positive results in suitably educated patients. This is a task that should never be forgotten.

摘要

由于我们所处地理和社会环境中的人口老龄化以及预防过早死亡方面的进展,慢性病(在这种情况下即糖尿病)的患病率不断上升。在我们的环境中,导致肥胖率大幅上升的饮食变化和久坐不动增加了糖尿病的患病率。我们的卫生系统在管理急性疾病方面准备得相当充分,但无论是卫生专业人员、转诊渠道——可能患者也一样——都没有为新的情况做好准备。因此,我们应该为慢性病管理做好准备,鼓励患者参与决策,并推动一种新的、不那么家长式的医患关系模式。斯坦福大学发起的经验,或者西班牙国家患者论坛的经验,都可以作为典范。在未来几年,专家型患者的角色无疑将非常有用。总体而言,医生和患者都非常相信新治疗方法和技术对缓解或管理疾病的贡献。在21世纪否认这一点将是荒谬的,但这些治疗方法和技术的所有可能性只有在受过适当教育的患者身上才会显示出积极效果。这是一项绝不能被遗忘的任务。