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[患者参与疾病自我管理的重要性:专家患者。支持患者自主性的新技术的作用]

[Importance of patient involvement in disease self-management: the expert patient. Role of new technologies to support patient autonomy].

作者信息

Millaruelo Trillo José Manuel

机构信息

Centro de Salud Torrero Este, Zaragoza, España.

出版信息

Aten Primaria. 2010 Sep;42 Suppl 1(Suppl 1):41-7. doi: 10.1016/S0212-6567(10)70007-X.

Abstract

Because of population aging in our geographical and social setting and progress in preventing premature death, there is an ever-increasing prevalence of chronic diseases, in this case diabetes. In our environment, the dietary changes and sedentariness that have led to the spectacular rise in obesity have increased the prevalence of diabetes. Our health system is reasonably well prepared to manage acute disease but neither health professionals nor referral circuits -nor probably patients- are prepared for the new scenario. Consequently, we should prepare ourselves for the management of chronic disease, encourage patient participation in decision-making and promote a new, less paternalistic, paradigm of the doctor-patient relationship. The experiences initiated by the University of Stanford, or in Spain by the National Patients' Forum, could serve as models. In the next few years, the figure of the expert patient will undoubtedly be highly useful. In general, physicians and patients place a great deal of faith in the contribution of new treatments and technologies to the relief or management of disease. To deny this in the XXI century would be ridiculous, but all the possibilities of these treatments and technologies only show positive results in suitably educated patients. This is a task that should never be forgotten.

摘要

由于我们所处地理和社会环境中的人口老龄化以及预防过早死亡方面的进展,慢性病(在这种情况下即糖尿病)的患病率不断上升。在我们的环境中,导致肥胖率大幅上升的饮食变化和久坐不动增加了糖尿病的患病率。我们的卫生系统在管理急性疾病方面准备得相当充分,但无论是卫生专业人员、转诊渠道——可能患者也一样——都没有为新的情况做好准备。因此,我们应该为慢性病管理做好准备,鼓励患者参与决策,并推动一种新的、不那么家长式的医患关系模式。斯坦福大学发起的经验,或者西班牙国家患者论坛的经验,都可以作为典范。在未来几年,专家型患者的角色无疑将非常有用。总体而言,医生和患者都非常相信新治疗方法和技术对缓解或管理疾病的贡献。在21世纪否认这一点将是荒谬的,但这些治疗方法和技术的所有可能性只有在受过适当教育的患者身上才会显示出积极效果。这是一项绝不能被遗忘的任务。

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