Communication Sciences and Disorders Department, Oklahoma State University, Stillwater, OK, USA.
Phys Occup Ther Pediatr. 2011 Feb;31(1):4-15. doi: 10.3109/01942638.2010.529005. Epub 2010 Nov 16.
Powered mobility has been found to have positive effects on young children with severe physical disabilities, but the impact on the family has been less well documented. We evaluated the impact of early powered mobility on parental stress, negative emotions, perceived social interactions, and parental satisfaction with wheelchair characteristics such as size and durability. The participants were parents of 23 children with disabilities-10 with orthopedic disabilities (average age 30.1 months) and 13 with cerebral palsy (average age 47.0 months). Pretest assessments were completed two times: at initial wheelchair evaluation and at wheelchair delivery. A posttest assessment was completed after each child had used the wheelchair for 4-6 months. Parents reported a lower perceived level of stress at the time of wheelchair delivery, although the magnitude of this effect was fairly small, standardized mean difference (δ) = .27. They also reported an increased satisfaction with their child's social and play skills (δ = .38), ability to go where desired (δ = .86), sleep/wake pattern (δ = .61), and belief that the general public accepts their child (δ = .39) after several months using the wheelchair. Parents reported an increase in interactions within the family at the time of wheelchair delivery (δ = .66). There was no decrease in negative emotions. Parents were satisfied with most factors relating to the wheelchair itself, with areas of concern being wheelchair size and difficulty adjusting the wheelchair. The findings suggest that self-initiated powered mobility for a young child had a positive impact on the family.
电动轮椅出行对严重身体残疾的幼儿有积极影响，但对家庭的影响却记录较少。我们评估了早期电动轮椅出行对父母压力、负面情绪、感知社交互动以及对轮椅特征（如大小和耐用性）的满意度的影响。参与者为 23 名残疾儿童的家长，其中 10 名为骨科残疾儿童（平均年龄 30.1 个月），13 名为脑瘫儿童（平均年龄 47.0 个月）。预测试评估进行了两次：在初始轮椅评估和轮椅交付时。在每个孩子使用轮椅 4-6 个月后，进行了一次后测评估。尽管效果相当小，标准化平均差异（δ）=.27，但家长在轮椅交付时报告的压力感知水平较低。他们还报告说，他们对孩子的社交和游戏技能（δ=.38）、想去的地方的能力（δ=.86）、睡眠/醒来模式（δ=.61）以及对公众接受他们的孩子的信念（δ=.39）的满意度增加了几个月后使用轮椅。家长报告说，在轮椅交付时，家庭内部的互动增加了（δ=.66）。负面情绪没有减少。家长对与轮椅本身相关的大多数因素都感到满意，关注的领域是轮椅的大小和调整轮椅的难度。研究结果表明，幼儿自主的电动轮椅出行对家庭产生了积极影响。
