Verdoux H, Goumilloux R, Monello F, Cougnard A
Inserm U657 pharmacoépidémiologie et évaluation de l'impact des produits de santé sur les populations, IFR99 santé publique, centre hospitalier Charles-Perrens, université Victor-Segalen Bordeaux 2, 33076 Bordeaux, France.
Encephale. 2010 Dec;36(6):484-90. doi: 10.1016/j.encep.2010.03.004.
To assess occupational outcome of persons with schizophrenia over the 2 years following the first request of disability status.
This study was carried out in collaboration with the Commission Technique d'Orientation et de Reclassement Professionnel (COTOREP) (technical commission for occupational guidance and rehabilitation of the disabled) de la Gironde (Bordeaux region, South Western France). Persons with schizophrenia or schizoaffective disorder requesting for the first time in 2006 a disability allowance or the status of disabled worker were assessed using a standardized questionnaire collecting data on clinical, occupational and income history. Information on occupational outcome over the 2 years after the first request was collected at the end of the follow-up using multiple sources of information. We used a broad definition of work, including moonlighting and episodic activities (baby-sitting or grape-harvesting), as well as study periods.
Of the 121 patients included at baseline, direct or indirect information was available for 108 (90%) at the 24-month assessment. Persons lost to follow-up were less likely to have worked before first request of disability status compared to persons with information available at the end of the follow-up, but did not differ regarding the other characteristics. Nearly half of the persons (41.7%) had worked over the follow-up, irrespective of the type and duration of the occupation. The working periods were of short duration (median duration 14.5 days, interquartile range 6.5-47.5) and most (98%) were done in low-qualified jobs. Nearly half of the persons reported that they had benefitted from support for starting or returning to work, mainly from recruitment agencies specialized in supporting disabled workers. Persons with the status of disabled worker (Reconnaissance de la qualité de travailleur handicapé) (RTH) were more likely to have worked over the follow-up period (66.7% vs 33.3%; OR=3.9; 95%IC 1.3-11.3; p<0.01) as well as persons who had benefitted from institutional support (61.1% vs 38.9%; OR=3.0; 95%IC 1.2-7.8; p=0.02). However, a noteworthy result was that most jobs were obtained by the patient's personal effort. Nearly one out of four patients (23.2%) was involved in vocational training over the follow-up period.
This prospective study demonstrates that half of persons with schizophrenia who benefit from the disabled status remain actively engaged in vocational rehabilitation. Hence, giving access to disability status does not act as a disincentive regarding the return or access to work. However, the benefit of being kept involved in vocational rehabilitation has to be weighted against the fact that most patients only obtained low-qualified jobs of short-duration. This precarious situation may be stressful and may have a deleterious impact regarding self-esteem.
评估首次申请残疾状态后2年内精神分裂症患者的职业结局。
本研究是与法国西南部波尔多地区吉伦特省的职业指导与康复技术委员会(COTOREP)合作开展的。2006年首次申请残疾津贴或残疾工人身份的精神分裂症或分裂情感性障碍患者,使用标准化问卷进行评估,该问卷收集临床、职业和收入史数据。在随访结束时,通过多种信息来源收集首次申请后2年的职业结局信息。我们对工作采用了宽泛的定义,包括兼职和临时性活动(保姆工作或葡萄采摘)以及学习阶段。
在基线纳入的121例患者中,24个月评估时108例(90%)有直接或间接信息。与随访结束时有信息的患者相比,失访患者在首次申请残疾状态之前工作的可能性较小,但在其他特征方面无差异。近一半(41.7%)的患者在随访期间工作过,无论职业类型和持续时间如何。工作时长较短(中位时长14.5天,四分位间距6.5 - 47.5),且大多数(98%)从事低技能工作。近一半的患者报告称他们受益于对开始工作或重返工作的支持,主要来自专门支持残疾工人的招聘机构。具有残疾工人身份(RTH)的患者在随访期间工作的可能性更大(66.7%对33.3%;OR = 3.9;95%IC 1.3 - 11.3;p < 0.01),受益于机构支持的患者也是如此(61.1%对38.9%;OR = 3.0;95%IC 1.2 - 7.8;p = 0.02)。然而,一个值得注意的结果是,大多数工作是患者通过个人努力获得的。近四分之一(23.2%)的患者在随访期间参与了职业培训。
这项前瞻性研究表明,受益于残疾状态的精神分裂症患者中有一半仍积极参与职业康复。因此,获得残疾状态并不会对重返工作或就业产生抑制作用。然而,持续参与职业康复的益处必须与大多数患者仅获得低技能、短时长工作这一事实相权衡。这种不稳定的状况可能会带来压力,可能对自尊产生有害影响。