Goldberg-Freeman Clara, Kass Nancy, Gielen Andrea, Tracey Patricia, Bates-Hopkins Barbara, Farfel Mark
Johns Hopkins University, Baltimore, MD, USA.
J Empir Res Hum Res Ethics. 2010 Dec;5(4):65-76. doi: 10.1525/jer.2010.5.4.65.
Health researchers are increasingly interested in how best to engage communities in their health-related research studies. To help determine how researchers have interacted with community members in their research, we conducted a survey of full-time faculty from the Johns Hopkins Medical Institutions regarding researchers' beliefs and experiences with community-based research. Approximately 41% of respondents who conducted human subject studies had enrolled local residents in their research. Researchers whose studies were based in the surrounding community were significantly more likely to involve community members in all stages of their research (e.g., selection of the problem, project planning, data collection, interpretation and dissemination of results, or developing an intervention) than were faculty whose studies enrolled community members as research participants but whose studies were not set in the community. Over 90% of all faculty respondents agree that community involvement improves the relevance of their research, although almost 60% had not done so. Most faculty value community involvement, but they want more institutional support for such activities and they seek better skills to involve community. Few studies have surveyed researchers who enroll community members as research participants to document practices regarding community involvement in the research process. Given that the majority (73.6%) of faculty responded that they intend to include local residents in their upcoming studies, future research to evaluate interventions designed to facilitate community involvement, especially in the inner city, would help stakeholders identify best practices for involving and engaging communities in health research.
健康研究人员越来越关注如何以最佳方式让社区参与与其健康相关的研究。为了帮助确定研究人员在其研究中是如何与社区成员互动的，我们对约翰霍普金斯医疗机构的全职教员进行了一项关于研究人员对基于社区研究的信念和经验的调查。在进行人体研究的受访者中，约41% 在其研究中招募了当地居民。与那些将社区成员作为研究参与者纳入研究但研究并非在社区中开展的教员相比，研究以周边社区为基础的研究人员在研究的各个阶段（如问题选择、项目规划、数据收集、结果解读与传播或制定干预措施）让社区成员参与的可能性要大得多。超过90% 的教员受访者都认为社区参与能提高其研究的相关性，尽管近60% 的人并未这样做。大多数教员重视社区参与，但他们希望此类活动能得到更多机构支持，并且他们寻求更好的技能来让社区参与进来。很少有研究对将社区成员作为研究参与者纳入研究的研究人员进行调查，以记录在研究过程中社区参与的相关做法。鉴于大多数（73.6%）教员回应称他们打算在即将开展的研究中纳入当地居民，未来评估旨在促进社区参与（尤其是在市中心）的干预措施的研究，将有助于利益相关者确定让社区参与健康研究的最佳做法。
