Knapp Caprice, Madden Vanessa, Wang Hua, Curtis Charlotte, Sloyer Phyllis, Shenkman Elizabeth
Department of Health Outcomes and Policy, University of Florida, USA.
Int J Palliat Nurs. 2010 Nov;16(11):542-7. doi: 10.12968/ijpn.2010.16.11.80020.
Palliative care programmes have the potential to affect several health outcomes for children and families, including reducing decisional conflict.
A telephone survey was conducted with 140 parents of children with life-limiting illnesses enrolled in Florida's publicly funded paediatric palliative care programme (Partners in Care: Together for Kids).
Multivariate results suggest that parents with less than a high school education had decisional conflict scores (DCS) that were 13 points higher (p<0.05) than parents with some college education. In addition, parents who indicated that they had recently made a decision for their children had DCS scores that were 7 points higher (p<0.05) than parents who indicated they had not.
Our findings suggest that paediatric palliative care programmes should treat parents with lower educational levels as being particularly vulnerable and should consider allocating additional resources to them when a decision for their children is imminent.
姑息治疗项目有可能影响儿童及其家庭的多项健康结局，包括减少决策冲突。
对佛罗里达州公共资助的儿科姑息治疗项目（关爱伙伴：携手为儿童）中登记的140名患有危及生命疾病儿童的父母进行了电话调查。
多变量结果表明，受教育程度低于高中的父母的决策冲突得分（DCS）比受过一些大学教育的父母高13分（p<0.05）。此外，表示最近为孩子做出决定的父母的DCS得分比表示未做出决定的父母高7分（p<0.05）。
我们的研究结果表明，儿科姑息治疗项目应将教育水平较低的父母视为特别脆弱的群体，并在即将为其子女做出决定时考虑为他们分配额外资源。
