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巴西南部炎症性肠病患者生活质量评估。

Assessment of quality of life of patients with inflammatory bowel disease residing in Southern Brazil.

作者信息

Cohen Danielle, Bin Ceres Maltz, Fayh Ana Paula Trussardi

机构信息

Methodist University Center, Porto Alegre, RS, Brasil.

出版信息

Arq Gastroenterol. 2010 Jul-Sep;47(3):285-9. doi: 10.1590/s0004-28032010000300014.

DOI:10.1590/s0004-28032010000300014
PMID:21140091
Abstract

CONTEXT

Chronic diseases have an impact on the quality of life of the individuals.

OBJECTIVE

To evaluate the quality of life of adults with inflammatory bowel disease by the inflammatory bowel disease questionnaire certified for Portuguese language.

METHODS

We interviewed 50 individuals from both genders aged from 18 to 60 years old, with Crohn's disease and ulcerative colitis, regardless of disease activity.

RESULTS

The average age of the sample was 42.2 ± 13.6 years old, the disease length was 98.8 ± 74.3 months, and 72% of patients had Crohn's disease and 14% presented disease activity. There was no significant difference in questionnaire scores of patients with different inflammatory bowel disease when they are in the remission phase (172.0 ± 42.4 and 173.6 ± 28.2 for ulcerative colitis and Crohn's disease, respectively, P = 0.886). When compared to scores of patients who were in crisis, it was found that they have a lower quality of life that patients in remission (123.8 ± 44.5 and 173.3 ± 31.5 for patients in crisis and remission, respectively, P = 0.001).

CONCLUSION

It was noticed that the quality of life of patients with inflammatory bowel disease did not differ among patients with Crohn's disease or ulcerative colitis, when patients are in remission. The main aspect which determines the loss of quality of life would be being at the stage of disease activity.

摘要

背景

慢性病会对个体的生活质量产生影响。

目的

通过经葡萄牙语认证的炎症性肠病问卷评估成年炎症性肠病患者的生活质量。

方法

我们采访了50名年龄在18至60岁之间的男女患者,他们患有克罗恩病和溃疡性结肠炎,无论疾病活动情况如何。

结果

样本的平均年龄为42.2±13.6岁,病程为98.8±74.3个月,72%的患者患有克罗恩病,14%的患者有疾病活动。不同炎症性肠病患者在缓解期时问卷得分无显著差异(溃疡性结肠炎和克罗恩病分别为172.0±42.4和173.6±28.2,P = 0.886)。与处于疾病发作期的患者得分相比,发现他们的生活质量低于缓解期患者(疾病发作期和缓解期患者分别为123.8±44.5和173.3±31.5,P = 0.001)。

结论

注意到炎症性肠病患者在缓解期时,克罗恩病患者和溃疡性结肠炎患者的生活质量没有差异。决定生活质量下降的主要因素是处于疾病活动阶段。

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