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Barriers and facilitators of African American participation in Alzheimer disease biomarker research.非裔美国人参与阿尔茨海默病生物标志物研究的障碍和促进因素。
Alzheimer Dis Assoc Disord. 2010 Jul-Sep;24 Suppl(Suppl):S24-9. doi: 10.1097/WAD.0b013e3181f14a14.
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Diagnosis and assessment of Alzheimer's disease in diverse populations.不同人群中阿尔茨海默病的诊断与评估
Alzheimers Dement. 2008 Jul;4(4):305-9. doi: 10.1016/j.jalz.2008.03.001. Epub 2008 Apr 21.
3
Recruiting vulnerable populations into research: a systematic review of recruitment interventions.招募弱势群体参与研究:招募干预措施的系统评价
J Gen Intern Med. 2007 Jun;22(6):852-63. doi: 10.1007/s11606-007-0126-3. Epub 2007 Mar 21.
4
Increasing minority research participation through community organization outreach.通过社区组织宣传增加少数群体的研究参与度。
West J Nurs Res. 2006 Aug;28(5):541-60; discussion 561-3. doi: 10.1177/0193945906287215.
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Social marketing as a framework for recruitment: illustrations from the REACH study.作为招募框架的社会营销:来自REACH研究的例证
J Aging Health. 2004 Nov;16(5 Suppl):157S-76S. doi: 10.1177/0898264304269727.
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Approaches to improving recruitment and retention of minority elders participating in research: examples from selected research groups including the National Institute on Aging's Resource Centers for Minority Aging Research.提高参与研究的少数族裔老年人招募率和留存率的方法:来自包括美国国立衰老研究所少数族裔衰老研究资源中心在内的选定研究小组的实例。
J Aging Health. 2004 Nov;16(5 Suppl):9S-17S. doi: 10.1177/0898264304268146.
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Prevalence of dementia in three ethnic groups: the South Florida program on aging and health.三个种族群体中痴呆症的患病率:南佛罗里达衰老与健康项目
Ann Epidemiol. 2003 Jul;13(6):472-8. doi: 10.1016/s1047-2797(02)00437-4.
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Lessons learned about minority recruitment and retention from the Centers on Minority Aging and Health Promotion.从少数族裔老龄化与健康促进中心汲取的关于少数族裔招募与留用的经验教训。
Gerontologist. 2003 Feb;43(1):18-26. doi: 10.1093/geront/43.1.18.
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Issues affecting minority participation in research studies of Alzheimer disease.影响少数群体参与阿尔茨海默病研究的问题。
Alzheimer Dis Assoc Disord. 1994;8(Suppl. 4):38-48.
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Caregivers' attitudes toward their family members' participation in Alzheimer disease research: implications for recruitment and retention.照顾者对其家庭成员参与阿尔茨海默病研究的态度:对招募和留用的影响
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非裔美国人招募参与阿尔茨海默病研究的跨学科外展模式。

An interdisciplinary outreach model of African American recruitment for Alzheimer's disease research.

机构信息

Division of Geriatrics and Nutritional Science, Washington University School of Medicine, 4488 Forest Park Avenue, Suite 201, St Louis, MO 63108, USA.

出版信息

Gerontologist. 2011 Jun;51 Suppl 1(Suppl 1):S134-41. doi: 10.1093/geront/gnq098. Epub 2010 Dec 20.

DOI:10.1093/geront/gnq098
PMID:21173436
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3092972/
Abstract

PURPOSE

The African American Outreach Satellite (Satellite) provides educational outreach to facilitate African American recruitment for longitudinal studies at the Washington University Alzheimer's Disease Research Center (ADRC). This descriptive article characterizes the Satellite's recruitment methods, plan for community engagement, results of recruitment efforts, and potential for replication.

DESIGN AND METHODS

The Satellite developed a comprehensive outreach and recruitment plan that identifies and addresses barriers to research participation. The Satellite conducts community outreach and recruitment programs and training for health care providers.

RESULTS

Enrollment of cognitively healthy and mildly demented African Americans for participation in all ADRC studies increased following implementation of the recruitment plan. Current African American participation rates for ADRC studies include 39% for lumbar puncture, 43% for positron emission tomography with Pittsburgh Compound-B, 52% for magnetic resonance imaging, 95% for apolipoprotein E genotype testing, and 100% for clinical and cognitive assessment.

IMPLICATIONS

The Satellite reduces barriers to research participation, encourages retention through sustained interactions with participants and their families, and develops lasting partnerships with community organizations and health professionals who care for African American elders.

摘要

目的

非裔美国人外展卫星(Satellite)为华盛顿大学阿尔茨海默病研究中心(ADRC)的纵向研究提供教育外展服务,以促进非裔美国人的招募。本文描述了卫星的招募方法、社区参与计划、招募工作的结果以及复制的潜力。

设计与方法

卫星制定了一项全面的外展和招募计划,确定并解决了参与研究的障碍。卫星开展社区外展和招募计划,并为医疗保健提供者提供培训。

结果

实施招募计划后,认知健康和轻度痴呆的非裔美国人参与所有 ADRC 研究的人数增加。目前 ADRC 研究中非裔美国人的参与率包括腰椎穿刺的 39%、正电子发射断层扫描与匹兹堡化合物-B 的 43%、磁共振成像的 52%、载脂蛋白 E 基因型检测的 95%、临床和认知评估的 100%。

意义

卫星减少了参与研究的障碍,通过与参与者及其家人的持续互动鼓励保留,并与关心非裔美国老年人的社区组织和医疗保健专业人员建立持久的伙伴关系。