肛门直肠畸形患儿父母的心理社会负担与生活质量
Psychosocial burden and quality of life in parents of children with anorectal malformation.
作者信息
Pruthi Gavneet K, Mohta Anup
机构信息
Departments of Clinical Psychology and Pediatric Surgery, Chacha Nehru Bal Chikitsalaya (affiliated to Maulana Azad Medical College), Geeta Colony, Delhi-110031, India.
出版信息
J Indian Assoc Pediatr Surg. 2010 Jan;15(1):15-8. doi: 10.4103/0971-9261.69135.
AIM
To assess the psychosocial burden and quality of life in parents of children with anorectal malformation.
SUBJECTS AND METHODS
This is a prospective study conducted in a tertiary care specialty hospital. Sample consisted of 50 parents (care givers), having children with anorectal malformation in the age group of 0-14 years. Data were collected through a semi structured interview with the care givers, using Zarit Burden Interview for assessing extent of burden and WHOQOL-BREF for assessing different aspects of quality of life.
STATISTICAL ANALYSIS USED
frequencies, percentages, mean and standard deviations were calculated for analyzing the data.
RESULTS
The study reveals greater psychosocial burden and poor quality of life, in terms of the psychological and environmental aspects as compared to the physical and social aspects, among the care givers.
CONCLUSIONS
The study found increased psychosocial burden and negative impact on the quality of life of parents, which varies with the stages of management and proper continuous counseling is recommended.
目的
评估肛门直肠畸形患儿父母的心理社会负担及生活质量。
研究对象与方法
这是一项在三级护理专科医院进行的前瞻性研究。样本包括50名父母（照顾者），其子女年龄在0至14岁之间，患有肛门直肠畸形。通过与照顾者进行半结构化访谈收集数据，使用扎里特负担访谈评估负担程度，使用世界卫生组织生活质量简表（WHOQOL - BREF）评估生活质量的不同方面。
所用统计分析方法
计算频率、百分比、均值和标准差以分析数据。
结果
研究表明，与身体和社会方面相比，照顾者在心理和环境方面的心理社会负担更重，生活质量较差。
结论
该研究发现父母的心理社会负担增加，对其生活质量产生负面影响，且这种影响因管理阶段而异，建议进行适当的持续咨询。
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