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The relationship between the care burden and quality of life of parents who have children with hematological problems and their perceived social support.患有血液疾病孩子的父母的护理负担与生活质量及其感知到的社会支持之间的关系。
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The Burden and Perceived Stress on Family Caregivers of Patients With Orofacial Cleft Deformities in The Perioperative Period of Cleft Repair.唇腭裂修复围手术期口面部畸形患者家庭照顾者的负担及感知压力
J Patient Exp. 2020 Dec;7(6):1602-1609. doi: 10.1177/2374373520948650. Epub 2020 Aug 14.
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印度先天性肛门直肠畸形患儿术后照料者的生活质量与负担水平

Quality of life and level of burden for caregivers of Indian children with post-operative congenital anorectal malformations.

作者信息

Godara Nitu, Nayak Geetarani, Tripathy Bikasha Bihary

机构信息

College of Nursing, All India Institute of Medical Sciences, Bhubaneswar, India.

Department of Pediatric Surgery, All India Institute of Medical Sciences, Bhubaneswar, India.

出版信息

Bioinformation. 2024 May 31;20(5):566-570. doi: 10.6026/973206300200566. eCollection 2024.

DOI:10.6026/973206300200566
PMID:39132234
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11309102/
Abstract

Parenting starts much before the baby is born. It always comes with mixed feelings during parenting. Therefore, it is of interest to report the quality of life and caregiver burden for Indian children with post-operative congenital anorectal malformations. We recruited total 56 caregivers for the present study. Data shows that the highest caregiver burden in economical and the lowest in psychological. Quality of life (QOL) was highest in physical domain and there was moderate negative correlation among caregiver burden, psychological health, and social relationship.

摘要

育儿在宝宝出生前就已开始。育儿过程中总是伴随着复杂的情感。因此，报告印度患有先天性肛肠畸形的儿童的生活质量和照料者负担很有意义。我们为本研究共招募了56名照料者。数据显示，照料者在经济方面的负担最高，在心理方面的负担最低。生活质量（QOL）在身体领域最高，照料者负担、心理健康和社会关系之间存在中度负相关。