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杜氏肌营养不良症患儿从地面坐立的评估量表的开发。

Development of an evaluation scale for sitting and standing from the ground for children with Duchenne muscular dystrophy.

作者信息

Escorcio Renata, Caromano Fatima Aparecida, Hukuda Michele Emy, Fernandes Lilian Aparecida Yoshimura

机构信息

Laboratory of Physiotherapy and Behavior, School of Medicine, University of Sao Paulo, Brazil.

出版信息

J Mot Behav. 2011;43(1):31-6. doi: 10.1080/00222895.2010.530306.

DOI:10.1080/00222895.2010.530306
PMID:21186460
Abstract

The authors developed an evaluation scale for sit-stand from the ground for children with Duchenne muscular dystrophy (DMD) and tested its reliability. The construction occurred in stages: (a) the characterization of the movement in healthy children, (b) the characterization of the movement in children with DMD, (c) the elaboration of the 1st version of the scale and the manual, (d) the evaluation by experts and readjustments, and (e) the analysis of inter- and intraexaminer reliability and correlation with the Vignos Scale, age, and time for the execution of the activity. The scale comprehended 3 phases for sitting and 5 for the standing. A very good repeatability of the measures of sitting and standing (ICC = 0.89 and 0.84, respectively) and excellent reproducibility (ICC = 0.93 and 0.92, respectively) was demonstrated. The Kappa coefficient for the 8 phases in the interexaminer analysis varied from 0.77 to 1.00 (excellent reliability), and in the intraexaminer analysis varied from 0.80 to 1.00 (excellent reliability). Good correlation was found between the variables on the Vignos Scale (age: r = 0.58; stand: r = 0.56). The scale is a reliability instrument that allows evaluation of the activity of sitting and standing in children with DMD.

摘要

作者为杜氏肌营养不良症(DMD)患儿开发了一种从地面起坐站立的评估量表,并测试了其可靠性。构建过程分阶段进行:(a)健康儿童运动特征描述;(b)DMD患儿运动特征描述;(c)量表第一版及手册的制定;(d)专家评估与调整;(e)分析检查者间和检查者内的可靠性以及与维格诺斯量表、年龄和活动执行时间的相关性。该量表包括3个坐立阶段和5个站立阶段。结果表明,坐立测量具有非常好的重复性(组内相关系数ICC分别为0.89和0.84)和出色的再现性(ICC分别为0.93和0.92)。检查者间分析中8个阶段的kappa系数在0.77至1.00之间变化(可靠性极佳),检查者内分析中kappa系数在0.80至1.00之间变化(可靠性极佳)。在维格诺斯量表上的变量之间发现了良好的相关性(年龄:r = 0.58;站立:r = 0.56)。该量表是一种可靠的工具,可用于评估DMD患儿的坐立活动。

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引用本文的文献

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Responsiveness of the domain climbing up and going down stairs of the Functional Evaluation scale for Duchenne Muscular Dystrophy: a one-year follow-up.杜氏肌营养不良症功能评估量表上下楼梯域的反应性:一年随访。
Braz J Phys Ther. 2016 Jun 16;20(5):471-476. doi: 10.1590/bjpt-rbf.2014.0178.
2
Relationship between the climbing up and climbing down stairs domain scores on the FES-DMD, the score on the Vignos Scale, age and timed performance of functional activities in boys with Duchenne muscular dystrophy.杜氏肌营养不良症男孩的FES-DMD上的上楼和下楼领域得分、维格诺斯量表得分、年龄与功能性活动的定时表现之间的关系。
Braz J Phys Ther. 2014 Nov-Dec;18(6):513-20. doi: 10.1590/bjpt-rbf.2014.0063.