Rehabilitation Center De Hoogstraat, Utrecht, The Netherlands.
Patient Educ Couns. 2011 Nov;85(2):e48-52. doi: 10.1016/j.pec.2010.12.011. Epub 2011 Jan 12.
To describe the course of social support in spouses of patients with stroke, and to examine direct and indirect relationships between social support and life satisfaction over time.
Prospective cohort study (N=180) with measurements at 2 months after discharge from inpatient rehabilitation, 1 year, and 3 years after stroke. Social support was assessed using the Social Support List-12, Life satisfaction with the Life Satisfaction Questionnaire (LiSat-9) and Caregiver strain with the Caregiver Strain Index. Random coefficient analyses was used.
Total social support and the 3 subtypes of social support decreased significantly over time. In all models, caregiver strain was associated with lower life satisfaction and social support was associated with higher life satisfaction, but there were no interaction effects between caregiver strain and social support on life satisfaction.
Spouses of patients with stroke experienced a decline of social support over time. Social support was positively associated with life satisfaction, regardless of the amount of caregiver strain experienced by the spouses.
It is important to discuss with caregivers of stroke patients the importance of maintaining their own social contacts and to facilitate this by arranging support if appropriate.
描述脑卒中患者配偶的社会支持历程，并考察社会支持与生活满意度之间的直接和间接关系随时间的变化情况。
前瞻性队列研究（N=180），在住院康复后 2 个月、1 年和 3 年后进行测量。使用社会支持清单-12 评估社会支持，使用生活满意度问卷（LiSat-9）评估生活满意度，使用照顾者负担指数评估照顾者负担。采用随机系数分析。
总社会支持和社会支持的 3 个亚型随时间显著下降。在所有模型中，照顾者负担与较低的生活满意度相关，社会支持与较高的生活满意度相关，但照顾者负担和社会支持对生活满意度之间没有交互作用。
脑卒中患者的配偶随着时间的推移经历了社会支持的下降。社会支持与生活满意度呈正相关，无论配偶经历的照顾者负担程度如何。
与脑卒中患者的照顾者讨论保持自身社会联系的重要性，并在适当的情况下安排支持，这一点很重要。
