Olsson Louise, Östlund Gunnel, Strang Peter, Jeppsson Grassman Eva, Friedrichsen Maria
Department of Social and Welfare Studies, Faculty of Health Sciences, Linköping University, Campus Norrköping, Sweden.
Int J Palliat Nurs. 2010 Dec;16(12):607-12. doi: 10.12968/ijpn.2010.16.12.607.
This article reports the social and psychological processes that 11 cancer patients receiving palliative home care used to keep their hope alive.
The patients described their ways of dealing with hope in interviews and diaries, and it was from these accounts that the processes were extracted, using a grounded theory methodology.
Two main processes emerged: maintaining life and preparing for death. When the patients focused on maintaining life, they tried to preserve its meaning and to communicate with others about life and death. They found it helpful to shift their focus and to involve fellow 'travellers' in their journey. To prepare for death was to take responsibility for the future and to see possibilities of living on even after death.
This paper revealed two parallel and interdependent processes used by patients in the palliative care phase to maintain hope and respond to living close to death.
本文报告了11名接受姑息性家庭护理的癌症患者用以维系希望的社会和心理过程。
患者在访谈和日记中描述了他们应对希望的方式，通过扎根理论方法从这些叙述中提炼出相关过程。
出现了两个主要过程：维持生命和为死亡做准备。当患者专注于维持生命时，他们试图保留生命的意义，并就生死问题与他人交流。他们发现转移注意力并让同行者参与到自己的旅程中很有帮助。为死亡做准备意味着为未来负责，并看到即使死后仍有继续活下去的可能性。
本文揭示了姑息治疗阶段患者用于维持希望并应对濒死状态的两个并行且相互依存的过程。
