Clinical Informatics Department, Walter Reed Army Medical Center, Washington DC, USA.
J Am Med Inform Assoc. 2011 Mar-Apr;18(2):118-24. doi: 10.1136/jamia.2010.004671. Epub 2011 Feb 2.
To design, build, implement, and evaluate a personal health record (PHR), tethered to the Military Health System, that leverages Microsoft® HealthVault and Google® Health infrastructure based on user preference.
A pilot project was conducted in 2008-2009 at Madigan Army Medical Center in Tacoma, Washington. Our PHR was architected to a flexible platform that incorporated standards-based models of Continuity of Document and Continuity of Care Record to map Department of Defense-sourced health data, via a secure Veterans Administration data broker, to Microsoft® HealthVault and Google® Health based on user preference. The project design and implementation were guided by provider and patient advisory panels with formal user evaluation.
The pilot project included 250 beneficiary users. Approximately 73.2% of users were < 65 years of age, and 38.4% were female. Of the users, 169 (67.6%) selected Microsoft® HealthVault, and 81 (32.4%) selected Google® Health as their PHR of preference. Sample evaluation of users reflected 100% (n = 60) satisfied with convenience of record access and 91.7% (n = 55) satisfied with overall functionality of PHR.
Key lessons learned related to data-transfer decisions (push vs pull), purposeful delays in reporting sensitive information, understanding and mapping PHR use and clinical workflow, and decisions on information patients may choose to share with their provider.
Currently PHRs are being viewed as empowering tools for patient activation. Design and implementation issues (eg, technical, organizational, information security) are substantial and must be thoughtfully approached. Adopting standards into design can enhance the national goal of portability and interoperability.
设计、构建、实施和评估与军用医疗系统绑定的个人健康记录(PHR),并根据用户偏好利用 Microsoft®HealthVault 和 Google®Health 基础设施。
2008 年至 2009 年在华盛顿州塔科马市的 Madigan 陆军医疗中心进行了试点项目。我们的 PHR 架构是一个灵活的平台,该平台整合了基于文档连续性和护理连续性记录的标准模型,通过安全的退伍军人管理局数据代理,根据用户偏好将国防部来源的健康数据映射到 Microsoft®HealthVault 和 Google®Health。该项目设计和实施由提供者和患者咨询小组指导,并进行了正式的用户评估。
试点项目包括 250 名受益用户。大约 73.2%的用户年龄<65 岁,38.4%为女性。在这些用户中,有 169 人(67.6%)选择了 Microsoft®HealthVault,81 人(32.4%)选择了 Google®Health 作为他们首选的 PHR。对用户的抽样评估反映出 100%(n=60)对记录访问的便利性感到满意,91.7%(n=55)对 PHR 的整体功能感到满意。
与数据传输决策(推式与拉式)、故意延迟报告敏感信息、理解和映射 PHR 使用和临床工作流程以及患者可能选择与提供者共享信息的决策相关的关键经验教训。
目前,PHR 被视为增强患者激活能力的工具。设计和实施问题(例如技术、组织、信息安全)非常重要,必须认真对待。将标准纳入设计可以增强国家的可移植性和互操作性目标。