Dengler Kate Alexa, Scarfe Gabbie, Redshaw Sarah, Wilson Valerie
Edgar Stephen Ward, The Children's Hospital at Westmead, Sydney, Australia.
J Spec Pediatr Nurs. 2011 Jan;16(1):80-4. doi: 10.1111/j.1744-6155.2010.00273.x.
From July 2008 through June 2009, 760 infants and children with cardiac conditions were admitted to a pediatric hospital in Australia with approximately 360 cardiac surgical procedures performed.This was the first experience in hospital for many of these children, with diagnoses signaling the beginning of a long and arduous journey. These children undergo multiple treatments and procedures,as well as multiple admissions for further surgeries. Procedures in any regard can cause stress and anxiety, especially in children who often have limited understanding and so little control over what happens to them (Lau, 2002).A heart center for children exists at the hospital with the aim of providing a consistent experience for children with cardiac conditions as they move through the different hospital environments, from preadmission clinic to operating theaters to the pediatric intensive care unit (PICU), and then on to the cardiac ward. The Heart Beads Program was developed within a context of person-centered care to enrich the experience of children with cardiac conditions by providing them with distinctive beads specific to each procedure, treatment, or event in recognition of their experiences and endurance (McCormack et al., 2008). This column focuses on the process of starting the program and on preliminary responses from staff, children, and families.
从2008年7月到2009年6月，760名患有心脏疾病的婴幼儿被收治到澳大利亚的一家儿科医院，期间实施了约360例心脏外科手术。对其中许多儿童来说，这是他们第一次住院，诊断结果意味着漫长而艰苦旅程的开始。这些儿童要接受多种治疗和手术，还要多次住院接受进一步手术。任何手术都可能导致压力和焦虑，尤其是对于那些通常理解能力有限且几乎无法掌控自身遭遇的儿童（刘，2002年）。该医院设有儿童心脏中心，旨在为患有心脏疾病的儿童在从入院前门诊到手术室、再到儿科重症监护病房（PICU），最后到心脏病房的不同医院环境中提供连贯的就医体验。“心脏珠计划”是在以人为本的护理背景下开展的，通过为患有心脏疾病的儿童提供与每项手术、治疗或事件特定相关的独特珠子，来认可他们的经历和承受力，从而丰富他们的体验（麦科马克等人，2008年）。本专栏重点介绍启动该计划的过程以及工作人员、儿童和家庭的初步反应。
