Tellier Myriam, Rochette Annie, Lefebvre Hélène
Centre for Interdisciplinary Research in Rehabilitation of Greater Montreal, Canada.
Int J Rehabil Res. 2011 Sep;34(3):209-14. doi: 10.1097/MRR.0b013e328343d540.
Clients with mild stroke may present subtle deficits that have an impact on complex activities and roles. The purpose of this study was to explore the perceived quality of life of spouses, 3 months after the client with stroke was discharged to go home from acute care. A qalitative design based on a constructivist paradigm was used. Interviews were conducted with family members of the clients with mild stroke, 3 months after discharge. An interview guide was used and the audio content was transcribed, followed by a content analysis. In this study, eight interviews were conducted (mean age 56.9±9.2 years; men=2/8), and six essential themes emerged from the data. According to the participants, clients with mild stroke present sequelae that interfere with complex tasks (patient), increasing the burden on other family members who have to limit their personal activities (daily living). Sometimes, spouses were reported to act like a parent, which caused tensions in the relationship (conjugal relationship). Anxiety is related to the risk of stroke recurrence (relapse) and some family members present physical symptoms and a lack of energy (health). However, family members do not have access to services despite support from their relatives (services). The results of this exploratory study strongly suggest that even a 'mild' stroke has an impact on the daily lives of spouses and affects their quality of life.
轻度中风患者可能存在细微的缺陷,这些缺陷会对复杂活动和角色产生影响。本研究的目的是探讨中风患者从急性护理出院回家3个月后其配偶所感知到的生活质量。采用了基于建构主义范式的定性设计。在出院3个月后,对轻度中风患者的家庭成员进行了访谈。使用了访谈指南,并对音频内容进行了转录,随后进行了内容分析。在本研究中,进行了8次访谈(平均年龄56.9±9.2岁;男性=2/8),数据中出现了6个基本主题。据参与者称,轻度中风患者存在后遗症,这些后遗症会干扰复杂任务(患者),增加了其他家庭成员的负担,他们不得不限制自己的个人活动(日常生活)。有时,配偶被报告表现得像父母,这导致了关系紧张(夫妻关系)。焦虑与中风复发风险(复发)有关,一些家庭成员出现身体症状和缺乏精力(健康)。然而,尽管得到了亲属的支持,家庭成员仍无法获得服务(服务)。这项探索性研究的结果强烈表明,即使是“轻度”中风也会对配偶的日常生活产生影响,并影响他们的生活质量。