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真相的阴影:影响儿科姑息治疗中沟通的文化和心理因素。

Shades of truth: cultural and psychological factors affecting communication in pediatric palliative care.

机构信息

Department of Psychiatry, Graduate School of Medical Science, Kyoto Prefectural University of Medicine, Kawaramachi-Hirokoji, Kyoto, Japan.

出版信息

J Pain Symptom Manage. 2011 Feb;41(2):491-5. doi: 10.1016/j.jpainsymman.2010.12.002.

Abstract

Communication with children who have life-threatening illnesses is a major challenge. Communication practices are greatly influenced by factors such as the child's age, the parents' wishes, and the cultural norms. This article presents the case of a 12-year-old Japanese boy with advanced hepatoblastoma. The patient also was diagnosed with Asperger's syndrome, which impairs interpersonal communication. The case is discussed from the perspective of clinical ethics, especially with regard to truth telling. The health care team faced an ethical dilemma because of the complications involved. Physicians treating children with cancer should be aware of these issues to be able to effectively communicate with their patients.

摘要

与患有危及生命疾病的儿童进行沟通是一项重大挑战。沟通实践受到多种因素的影响,例如儿童的年龄、父母的意愿和文化规范。本文介绍了一例患有晚期肝母细胞瘤的 12 岁日本男孩的病例。该患者还被诊断患有阿斯伯格综合征,这会影响人际交往沟通。本文从临床伦理的角度,特别是从告知真相的角度对该病例进行了讨论。医疗团队面临着由于并发症而产生的伦理困境。治疗癌症儿童的医生应该意识到这些问题,以便能够与患者进行有效的沟通。

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