Department of Neurology, Children's Hospital Boston, MA, USA.
J Neurosci Nurs. 2011 Feb;43(1):29-35.
Parents of children with epilepsy, like parents of children with many other chronic conditions, are faced with a constant feeling of uncertainty about their child's condition. This uncertainty can lead to a decreased ability to cope as evidenced by increased stress levels, negative mood states, and impaired family functioning. Because altered coping in the parent may have a profound negative impact on the child's psychosocial adjustment to living with a chronic condition, it is important to identify ways to facilitate positive coping skills in the parent. The purpose of this review was to critically analyze the existing literature related to the challenges associated with parenting a child who has epilepsy. Interventions geared toward facilitating coping in parents will also be reviewed, and gaps in the literature will be identified. Lastly, future implications for nursing research will be discussed.
癫痫患儿的父母与其他许多患有慢性疾病的儿童的父母一样，常常对孩子的病情感到不确定。这种不确定性可能导致应对能力下降，表现为压力水平升高、情绪状态消极和家庭功能受损。由于父母应对方式的改变可能对孩子适应慢性病的社会心理产生深远的负面影响，因此，确定促进父母积极应对技能的方法非常重要。本综述的目的是批判性地分析与养育癫痫患儿相关挑战的现有文献。还将审查针对父母应对能力的干预措施，并确定文献中的空白。最后，将讨论护理研究的未来意义。
