Poole Janet L, Willer Kelly, Mendelson Cindy, Sanders Margaret, Skipper Betty
Occupational Therapy Graduate Program, University of New Mexico, Albuquerque, NM, USA.
Musculoskeletal Care. 2011 Mar;9(1):32-40. doi: 10.1002/msc.197. Epub 2010 Nov 24.
The purpose of this study was to compare perceived parenting abilities in mothers with systemic sclerosis (SSc) based on the subtype of SSc and age group of their children, and to examine how the degree of pain, fatigue and functional ability relates to parenting ability.
In this cross-sectional survey, 74 mothers with SSc, who had children aged 18 years or younger living at home with them, completed a series of questionnaires online or on paper. The questionnaires included the Parent Disability Index (PDI) and surveys regarding demographic information, pain (visual analogue scale), fatigue (Multidimensional Assessment of Fatigue) and functional ability (Health Assessment Questionnaire).
An analysis of variance revealed that the mean age of the mother (F(2,71) = 7.9; p < 0.01), mean PDI score (F(2,68) = 5.4; p < 0.01) and mean pain score (F(2,71) = 4.0; p = 0.02) were each associated with the age group of the children. The univariate analysis of variance results showed that dichotomized pain (F(1,69) = 13.3; p < 0.01), fatigue (F(1,69) = 18.9; p < 0.01) and disability (F(1,69) = 9.8; p < 0.01) were each associated with the PDI score. The multivariate analysis of variance results showed that dichotomized pain (F(1,68) = 7.5; p < 0.01) and fatigue (F(1,68) = 12.7; p < 0.01) were associated with the PDI.
Mothers with SSc report difficulty with parenting, which can be related to the severity of the symptoms. The findings suggest that interventions to reduce pain and fatigue may improve perceived parenting ability.
本研究旨在根据系统性硬化症（SSc）的亚型及其子女的年龄组，比较SSc母亲感知到的育儿能力，并探讨疼痛程度、疲劳程度和功能能力与育儿能力之间的关系。
在这项横断面调查中，74名患有SSc且家中有18岁及以下子女的母亲通过在线或纸质方式完成了一系列问卷。问卷包括父母残疾指数（PDI）以及关于人口统计学信息、疼痛（视觉模拟量表）、疲劳（疲劳多维评估）和功能能力（健康评估问卷）的调查。
方差分析显示，母亲的平均年龄（F(2,71) = 7.9；p < 0.01）、平均PDI得分（F(2,68) = 5.4；p < 0.01）和平均疼痛得分（F(2,71) = 4.0；p = 0.02）均与子女的年龄组相关。单因素方差分析结果表明，二分法疼痛（F(1,69) = 13.3；p < 0.01）、疲劳（F(1,69) = 18.9；p < 0.01）和残疾（F(1,69) = 9.8；p < 0.01）均与PDI得分相关。多因素方差分析结果显示，二分法疼痛（F(1,68) = 7.5；p < 0.01）和疲劳（F(1,68) = 12.7；p < 0.01）与PDI相关。
患有SSc的母亲报告在育儿方面存在困难，这可能与症状的严重程度有关。研究结果表明，减轻疼痛和疲劳的干预措施可能会提高感知到的育儿能力。
